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Amalia's Substack

Tracing Endo

My personal Substack

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PricingOnly free issuesPublishesWeekly
Issues4Founded2 months agoLast Issue22 days ago
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Latest Issues

Between Cycles: The Invisible Labor of Chronic Illness

When a provider first suggested endometriosis as the cause of my suffering these last 13 years, I thought I’d finally have answers. Instead, I found myself in liminal spaces between suspected but unconfirmed, waiting for surgery, cycling th...

22 days ago
10
1

Bodies Ignored

Introduction

Endometriosis is a chronic inflammatory condition that affects reproductive and major organ systems, where tissue similar to the uterine lining grows outside the uterus and attaches to internal organs. This tissue responds to...

a month ago
8
1

Today, I begin Pelvic PT

Today, I begin pelvic floor physical therapy. If you've spent any time in the endometriosis community, you've probably heard of pelvic floor PT; it is often recommended by providers and endo warriors ahead in their journey as a way to addre...

a month ago
12
1

Welcome!

Welcome to Tracing Endo: Stories Beyond a Diagnosis.

I’m a patient scholar and public health researcher navigating life after a recent endometriosis diagnosis. For years, dismissal—by providers and myself—felt normal. Now I’m tracing the p...

2 months ago
13
4

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  • Tracing Endo

    Welcome to Tracing Endo: Stories Beyond a Diagnosis. Patient scholar investigating endo through lived experience and evidence. Here, lived expertise is evidence. Safe space for all navigating and passionate about endo.

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