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Calling all ME/CFS Allies!

Encephalogirl

ME/CFS is a disabling neuroimmune disease without any approved treatments, diagnostic tests or knowledgeable doctors. This is my strange life with this strange disease. This is my effort to rally support for a forgotten patient community.

Platform
Substack
PricingOnly free issuesPublishesTwice weekly
Issues49SubscribersRead encephalogirl.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

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Applying for Disability

Can I sail through the changin' ocean tides?

7 months ago
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ME/CFS Research Roadmap Webinar #2

The next ME/CFS Research Roadmap webinar will take place on October 19, starting at 11am ET. Focusing on how ME/CFS impacts the immune system, presenters will describe current research, knowledge gaps, and future research opportunities in t...

7 months ago
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Long COVID Federal Policy Call Tomorrow

### When: September 26 at 11:00am PT (2:00pm ET)

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Authors

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  • Encephalogirl

    Welcome, ME Allies! Recruiting an army for ME/CFS & Long COVID advocacy, fundraising & activism. We’re too sick to do this alone, we need your help!

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