Calling all ME/CFS Allies!
EncephalogirlME/CFS is a disabling neuroimmune disease without any approved treatments, diagnostic tests or knowledgeable doctors. This is my strange life with this strange disease. This is my effort to rally support for a forgotten patient community.
| Platform |  | Pricing | Only free issues | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 53 | Subscribers | Read | encephalogirl.substack.com |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
Galen & James, a life of very severe ME
I have “moderate” ME. At times, I would say I’ve been “moderate to severe.” There are a few severity scales floating around out there, but in general, it’s mild, moderate, severe, very severe. According to the American ME/CFS Society:
Brains! Neuroinflammation in ME/CFS
Myalgic Encephalomyelitis. It’s right there in the name: inflammation of the brain and spinal cord. ME is a neurological disease impacting the central nervous system. Yet, you’d never know it based on how we’re often treated by doctors. I w...
Advocacy Opportunity (US)
As I’m slowly working my way through a post about neuroinflammation and the neurological side of ME, please take a moment to contact your senator or pass this message along to others, if you are able. Contacting your senator and expressing ...
Radical Rest and Beyond
I’m back!
Authors
The writers behind this newsletter.
Welcome, ME Allies! Recruiting an army for ME/CFS & Long COVID advocacy, fundraising & activism. We’re too sick to do this alone, we need your help!
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