Calling all ME/CFS Allies!
EncephalogirlME/CFS is a disabling neuroimmune disease without any approved treatments, diagnostic tests or knowledgeable doctors. This is my strange life with this strange disease. This is my effort to rally support for a forgotten patient community.
| Platform |  | Pricing | Only free issues | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 59 | Subscribers | Read | encephalogirl.substack.com |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
Oxaloacetate
Oxaloacetate is a food grade supplement that has worked wonders for some with ME. I have recently tried it as a crash “rescue” supplement. I’ve taken it during times of severe PEM/a crash either as a one-off or over the span of a couple day...
More Brains, More Data ME is Neurological
About a year ago I wrote a post about neuroinflammation found in people with ME. Well, a new study is out that lends more evidence to that, “Brain and muscle chemistry in myalgic encephalitis/chronic fatigue syndrome (ME/CFS) and long COVID...
Stressed Cells, Spinal Fluid, and Biomarker Hope
In second place, my recent reader poll showed a lot of interest in a science update. So, here we go. Some recent studies with summaries below.
Deconditioned? Nope.
This post is a bit of a cheat, as I’m going to reproduce a summary written by Solve ME. No apologies, though, because this is mega important. The professional notion that persists out there is that ME and Long COVID patients are symptomatic...
Authors
The writers behind this newsletter.
Welcome, ME Allies! Recruiting an army for ME/CFS & Long COVID advocacy, fundraising & activism. We’re too sick to do this alone, we need your help!
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