DementiaWho
Khadra AwomerLife after caregiving, the honest version: personal essays, practical advice, and a weekly dementia research roundup in plain English.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 44 | Founded | a year ago | Last Issue | 7 days ago |
| Active | |||||
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dementiawho.substack.comLatest Issues
The Problem With Asking “Are You a Caregiver?”
It’s Carers Week, and there are 5.8 million unpaid carers in the UK. Research shows that 54% of them took more than a year to realise that’s what they were. Nearly a quarter took more than five years. Almost one in ten took a decade and a s...
No Matter the Weight You Carry, You Don't Have to Carry It Alone
I want to tell you about Jordan and Cian Adams this week. They are two brothers who have just completed 33 marathons in 33 days in memory of their mum, Geraldine, who died from frontotemporal dementia (FTD) and raise funds for dementia rese...
I Cried Waiting for the Lift After My CT Scan
I cried waiting for the lift after my CT scan this week, because it was the first time I had gone back to the hospital where mum died.
Even writing that sentence still feels strange. I knew going back there would affect me, but I didn’t re...
Can Caregiving Affect Your Own Brain Health?
Honestly, I suspect many long-term caregivers will read that headline, look at their endless to-do list, and think: “Well, yes. I could have told you that years ago.”
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When you’re living a full-time caregiving role, doing 50...
I Sat Up at Night Grieving Someone Who Was Still Here. There's a Name for That.
Dementia is a cruel disease. I could write endlessly about that alone. But one of the cruelest is this: you can miss someone while still caring for them every single day.
I know that sounds weird but if you’re a dementia caregiver, you’ll...
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Authors
The writers behind this newsletter.
I write about dementia care and the life that follows it after 13 years caring for my mum. This Substack offers grounded dementia advice and a weekly research roundup in plain language and talks about grief, identity, and finding your way back.
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