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Emily Foucault

Emily Foucault

\ud83d\udc69\ud83c\udffb‍\ud83e\uddb0 Patient Advisor @camhnews @uoft \ud83e\udd93 Rare Disease Advocate (MCAS, Adenomyosis, GGM) \ud83c\udf3fSlow-Paced Lifestyle (ME/CFS) https://linktr.ee/emilyfoucault

Platform
Substack
PricingOnly free issuesPublishesMonthly
Issues2SubscribersRead emilyfoucault.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

Rare Disease Day 2025

🦓 For millions of people with rare diseases, the road to a diagnosis is long, exhausting, and often filled with medical gaslighting. I know this firsthand.

10 months ago
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Why I Advocate: A Journey Through Invisible Challenges

Introduction: Welcome to the first issue of my Substack! I’m Emily Foucault, a patient advisor, storyteller, and advocate living with complex chronic conditions. I’m thrilled to share this space with you—a place where I’ll blend my lived ex...

a year ago
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1

Authors

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  • Emily Foucault

    \ud83d\udc69\ud83c\udffb‍\ud83e\uddb0 Patient Advisor @camhnews @uoft \ud83e\udd93 Rare Disease Advocate (MCAS, Adenomyosis, GGM) \ud83c\udf3fSlow-Paced Lifestyle (ME/CFS) https://linktr.ee/emilyfoucault

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