
Hi there! I'm Emily. I'm a mom to an impossibly cute two-year-old who has an impossibly cruel terminal disease (Leigh Syndrome). Finding joy through long walks, cooking, dark humor, skiing, and creating sweet memories with my family.
| Platform | Pricing | Only free issues | Publishes | Weekly | |
|---|---|---|---|---|---|
| Issues | 32 | Subscribers | Read | medicalmom.substack.com |
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I started this story a few months ago and finally finished it while sick, in between fever dreams. This one is just for fun—no hidden metaphors about anticipatory grief 🙃
I’m writing this after a walk in the rain on New Year’s Day.
> “I know nothing with any certainty, but the sight of the stars makes me dream.”
The writers behind this newsletter.
I write about real life with my son’s rare disease (Leigh syndrome) Finding joy through long walks, cooking, dark humor, skiing, and creating sweet memories with our little family of 3.
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