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Esther

Esther

Young Onset Parkinson’s Disease is probably the least interesting thing about me

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Substack
PricingOnly free issuesPublishesWeekly
Issues5SubscribersRead shakinginmyboots1.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

Our Stories

We are, in many ways, our stories. The first time I shared my diagnosis story it was a cathartic experience. Healing through release of pain. I talk about George Ackerman being the first person to ask me for my story. George, aka Together ...

7 months ago
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The Big Lie-Interdisciplinary Care Teams

I used to prepare hospitals for Joint Commision surveys. A triennial event where a couple of people, usually a retired hospital admin, a nurse and a engineer, storm the gates of a healthcare facility, rolling briefcases in hand and insist t...

8 months ago
4
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Moving On

Today marks 2 years since my diagnosis with Young Onset Parkinson’s Disease. Last year I spent the day reflecting, looking back. I made a TikTok, a short video, of me telling myself what I wish I had known that life-changing day. Today I di...

9 months ago
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2

The “Good” Addiction

What if I told you I ran marathons? As a person with Parkinson’s you would say “Wow, that’s great! It’s good to exercise and get outdoors. Have a hobby that improves overall health.” But what if I ran so much my kids had to remind me to do ...

10 months ago
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  • Esther

    Young Onset Parkinson’s Disease is probably the least interesting thing about me

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