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Jillian Eisloeffel

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Substack
PricingOnly free issuesPublishesWeekly
Issues6Founded6 months agoLast Issue3 months ago
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Latest Issues

When “Just Autism” Isn’t the Whole Story

There’s a moment many parents of children with profound autism eventually face, alwhen the explanations we have been given no longer fully match what we are living.

For years we were told that what we were seeing with our son was simply au...

3 months ago
1

What Crisis Support Looks Like in the Home of Profound Autism- a Parents Perspective

I want to give you a window into what crisis really looks like in our home.

When my child enters a severe behavioral or self-injurious crisis. It is a full-body neurological emergency where his nervous system is overwhelmed and he is no lo...

5 months ago
1

When the Body Speaks: Understanding Behavior as Communication in Profound Autism

One of the deepest lessons I’ve learned raising a child with profound autism is that behavior is never random. It is language. It is the body speaking when words cannot.

In a world that relies so heavily on spoken language, we forget that...

5 months ago
1
1

Our Reality with Profound Autism

This Is Our Reality…

There are nights when safety means sedation.

That sentence alone will make some people flinch. Others will rush to soften it, to explain it away, to reassure themselves that it must be temporary. I’ve learned not to d...

5 months ago
1

The Autism No One Wants to Talk About and Why Families Like Mine Are Done Being Silent

Every time I speak honestly about my son’s reality with profound autism, someone replies with a version of the same message. It might be “I wouldn’t change my autism, it is a gift.” It might be “Why would you want anything to be different?...

6 months ago
1

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