Making sense of ME/CFS
K. JohnstoneExploring ME/CFS and related illnesses. I'm a non-scientist who sometimes writes about science, so take what I say with a dose of caution.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 63 | Subscribers | Read | mecfs.substack.com |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong)
Abstact art representing a complex situation without clear boundaries. Photo credit: Vibrant abstract fluid art in blue and coral hue by Landiva Weber.
Somatic symptom disorder: Why your doctor doesn't believe you're really sick
If you become seriously ill, your doctor might decide that the symptoms are ‘all in your head’. To most people this would seem absurd, but to doctors it seems perfectly reasonable, because doctors believe in something called somatic symptom...
The Name of My Disease
I did a rather sarcastic video on why you really, really shouldn’t use the name ‘chronic fatigue syndrome’, and I’m posting a transcript here for those who’d rather read than listen.
On disability, ableism, Long Covid, and opportunities for social change
I was so impressed by this Imani Barbarin interview, which packs several big ideas into a short amount of time, that I wanted to do a short post on it.
Authors
The writers behind this newsletter.
Exploring a fascinating and confusing illness: ME/CFS - multiple encephalomyelitis / chronic fatigue syndrome.
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