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Making sense of ME/CFS

K. Johnstone

Exploring ME/CFS and related illnesses. I'm a non-scientist who sometimes writes about science, so take what I say with a dose of caution.

Platform
Substack
PricingOnly free issuesPublishesWeekly
Issues72SubscribersRead mecfs.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

Pain without shame

This post is more personal than usual; I write about living with chronic pain, and having feelings of shame which result from medical gaslighting. This will definitely be upsetting for a lot of people - take care of yourselves and feel free...

14 days ago
20
7

Psychologizing kids with asthma, in the past and today

When we struggle to make sense of how physical illness is dismissed and psychologized, it helps to remember that this problem isn’t new. Physical illness was also minimized and psychologized in the past, in ways that can seem ridiculous to ...

18 days ago
13
2

Liaison psychiatry

Many of us have heard a similar story: a patient was seriously ill in hospital. The doctors were concerned. A great many tests were done, but the doctors couldn’t understand what was causing the problem. Or the problems were complex, unusua...

19 days ago
22
7

How common is Ehlers Danlos Syndrome?

Ehlers Danlos syndrome (EDS) is a condition where the body’s connective tissue doesn’t function properly, leading to a long list of health problems. People with EDS are famously extra-flexible, but they also deal with a long list of problem...

21 days ago
23
13

Authors

The writers behind this newsletter.

  • K. Johnstone

    Exploring ME (myalgic encephalomyelitis) and chronic illness.

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