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Making sense of ME/CFS

K. Johnstone

Exploring ME/CFS and related illnesses. I'm a non-scientist who sometimes writes about science, so take what I say with a dose of caution.

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Substack
PricingOnly free issuesPublishesWeekly
Issues72Founded4 years agoLast Issuea month ago
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Latest Issues

Pain without shame

This post is more personal than usual; I write about living with chronic pain, and having feelings of shame which result from medical gaslighting. This will definitely be upsetting for a lot of people - take care of yourselves and feel free...

a month ago
28
7

Psychologizing kids with asthma, in the past and today

When we struggle to make sense of how physical illness is dismissed and psychologized, it helps to remember that this problem isn’t new. Physical illness was also minimized and psychologized in the past, in ways that can seem ridiculous to...

a month ago
13
1

Liaison psychiatry

Many of us have heard a similar story: a patient was seriously ill in hospital. The doctors were concerned. A great many tests were done, but the doctors couldn’t understand what was causing the problem. Or the problems were complex, unusua...

a month ago
22
7

How common is Ehlers Danlos Syndrome?

Ehlers Danlos syndrome (EDS) is a condition where the body’s connective tissue doesn’t function properly, leading to a long list of health problems. People with EDS are famously extra-flexible, but they also deal with a long list of problem...

a month ago
28
16

How medical training promotes medical gaslighting

Medical gaslighting occurs when a medical professional wrongly downplays or dismisses a patient’s symptoms. It can cause serious long-term harm: PTSD, loss of confidence in medical professionals, avoidance of needed medical care, loss of se...

a month ago
103
25

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  • K. Johnstone

    Exploring ME (myalgic encephalomyelitis) and chronic illness.

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