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Making sense of ME/CFS

K. Johnstone

Exploring ME/CFS and related illnesses. I'm a non-scientist who sometimes writes about science, so take what I say with a dose of caution.

Platform
Substack
PricingOnly free issuesPublishesWeekly
Issues51SubscribersRead mecfs.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

Akureyri disease

In the fall and winter of 1948 and 1949 an outbreak of an illness swept through the town of Akureyri, northern Iceland, causing muscle weakness and paralysis as well as pain and mild fever. The illness affected 6-7% of the town’s population...

3 months ago
11
2

Neurasthenia

Neurasthenia is unfamiliar to most people today, but it was a common diagnosis in the US in the late nineteenth and early twentieth centuries. It rose to medical prominence in 1869 when the American neurologist George Beard published his cl...

3 months ago
12
7

I've noticed some disturbing trends in Long Covid ME/CFS research

These are mostly based on this paper by Haunhorst et al, which does have some good points, but which I found very frustrating to read. In no particular order, here they are:

3 months ago
39
10

The Incline Village outbreak of 1984 (part 1)

In the previous post I wrote about Melvin Ramsay, an infectious diseases doctor who became an expert in myalgic encephalomyelitis (ME). Although the scientific investigations available in his day were limited he developed a clear understand...

4 months ago
8
1

Authors

The writers behind this newsletter.

  • K. Johnstone

    Exploring a fascinating and confusing illness: ME/CFS - multiple encephalomyelitis / chronic fatigue syndrome.

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