Persistent Horrors Survivor
Persistent Horrors SurvivorI share a mix of advocacy related to complex/rare illness and personal stories in what I call \ud83e\uddda♀️a fairy tale style\ud83e\udd84 (but the german kind)
| Platform |  | Pricing | Only free issues | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 9 | Subscribers | Read | persistenthorrorssurvivor.substack.... |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
The Endless Days Get A Light at the End of the Tunnel; My Medical Journey Until Now
On a good day now I have 8ish active hours, broken up with many lay down breaks and naps. 4 of those good upright hours are in a rigid neck brace, usually in the early morning, a couple for work (from home on reduced responsibility), and a ...
To Wear or Not to Wear? A Hot Take About Wearables
I wore an apple watch for years and got a visible paired polarity sensor that I wore for about a year in efforts to improve fatigue by pacing. I am a scientist and data speaks loud and clear to me, or so I once thought. I was fascinated by ...
100 miles to Physical Therapy on a 1000 mile Journey
I have been traveling 100 miles round trip every week to see a specialist Physical Therapist, first for Tethered Cord Syndrome, then thoracic outlet syndrome, and now cervical instability. I am actually moving in the next month to be closer...
In the Inbetween
I will start by saying I have never been more uncomfortable in my entire life, but am still comforted by much. A vertebrae and rib are twisted into my backside, but the warmth of the heated pad I lay up against radiates into the swollen tis...
Authors
The writers behind this newsletter.
I share a mix of advocacy related to complex/rare illness and personal stories in what I call \ud83e\uddda♀️a fairy tale style\ud83e\udd84 (but the german kind)
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