Persistent Horrors Survivor
Persistent Horrors SurvivorI share a mix of advocacy related to complex/rare illness and personal stories in what I call \ud83e\uddda♀️a fairy tale style\ud83e\udd84 (but the german kind)
| Platform |  | Pricing | Only free issues | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 12 | Subscribers | Read | persistenthorrorssurvivor.substack.... |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
Charting a New Path
You may have noticed I have been laying low for a bit. I have been working hard to heal and am finally ready to share where I am at now that I am in a good spot and seem to have gotten over the most challenging early hurdles.
An Update From a Really Good Week
If the doomsday clock was instead a clock measured until I feel “spry” again, as I so eloquently communicated how invasive cervical traction testing made me feel at the time; presently we are only a few minutes from midnight.
Early Rough Patches and Positive Signs; Post Op CCF Part 1
This recovery is hard, long, and has more ups and downs than the dudes ordering those little blue pills. Day to day changes a lot but I still wanted to share an overview of some of the highlights/rough patches. if ur new- an overview is on ...
The Endless Days Get A Light at the End of the Tunnel; My Medical Journey Until Now
On a good day now I have 8ish active hours, broken up with many lay down breaks and naps. 4 of those good upright hours are in a rigid neck brace, usually in the early morning, a couple for work (from home on reduced responsibility), and a ...
Authors
The writers behind this newsletter.
I share a mix of advocacy related to complex/rare illness and personal stories in what I call \ud83e\uddda♀️a fairy tale style\ud83e\udd84 (but the german kind)
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