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Artwork for ALS: Healing Conundrums

ALS: Healing Conundrums

pam wescott

My experience of living with ALS and the healing conundrums I've faced.

Platform
Substack
PricingOnly free issuesPublishesTwice weekly
Issues81SubscribersRead phwescott.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

ALS: Bracing for a reunion

When we left the neck brace appointment at Boston Orthotics and Prosthetics at the Children’s Hospital in Waltham, we were told they had a mad scientist who is retiring but might take my case as I’m a tough one. When I heard young children ...

2 months ago
14
16

ALS: Full circle back to the ER

“I need scream therapy” Kathleen said when she was making a fourth call to reach the cataract surgeon at Mass Eye and Ear to amend my eyeglass prescription so that reading text on my computer does not look fuzzy. She was stuck in a loop and...

2 months ago
13
21

ALS: makes me feel like a burden

Asking Kathleen to cut my fingernails, and when I hit my shin on the sharp edge of my footstool, calling out for an ice pack. These were signs that my strength and mobility is being affected. There are bigger things of course. Kathleen is h...

3 months ago
7
18

ALS: down with negativity

I miss kitchen talk. At my brother’s house on Martha’s Vineyard just after Labor Day weekend, I received the opportunity to remember.

3 months ago
10
7

Authors

The writers behind this newsletter.

  • pam wescott

    Once bicycled across the U.S. to attend grad school at Berkeley.

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