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Artwork for ALS: Healing Conundrums

ALS: Healing Conundrums

pam wescott

My experience of living with ALS and the healing conundrums I've faced.

Platform
Substack
PricingOnly free issues
PublishesWeeklyIssues29
SubscribersRead phwescott.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

ALS: brings gifts from all directions

We were watching when my brother Tom texted a photo of Luqui, our one-and-a-half-year-old grand-nephew taking in the Super Bowl with his dad Alec. I had read on Suleika Jaouad’s Substack that her husband Jon Batiste asked her to paint his p...

2 months ago
4
1

7. Filming at the Flying Z

When we set off to visit Maribel at the Flying Z Ranch outside of Jackson Hole, we settled into travel mode, which meant Candy Crush for Pedee and time for me to strategize. But first, I broke our unstated rule to keep silent and said, “How...

2 months ago
2
0

6. Waterslide

The two-hour drive to the hot springs would give me plenty of time to think as Pedee sat next to me playing on her phone.

2 months ago
4
1

ALS: My genre-busting bulbar version

When he was 14, the writer Paul Auster sat in a meadow where he’d camped with a friend who was dying from a lightning strike. Later, he lost a grandmother to ALS which a NYTimes remembrance recalls he observed left its victims with: “no hop...

2 months ago
9
8

Authors

The writers behind this newsletter.

  • pam wescott

    Once bicycled across the U.S. to attend grad school at Berkeley.

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