
My experience of living with ALS and the healing conundrums I've faced.
| Platform | Pricing | Only free issues | Publishes | Weekly | |
|---|---|---|---|---|---|
| Issues | 94 | Subscribers | Read | phwescott.substack.com |
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Our friend Joan who lost her partner Holly to ALS brings us joy and peace when she visits and we are so grateful. This week she brought the sweetest frosty fern with a red cardinal sitting on top and a plant lady ornament for our tree.
I remember when I could eat, talk freely, and look forward to sleeping at night. I didn’t have to constantly ask for help to plug things in, grab things off a tall shelf, or carry the tray with my syringes and meds from the kitchen to livin...
My mantra is “Be strong!” When I get out of bed in the morning, the thought goes through my head, “Will I fall?” I say, “No, BE STRONG!” When we discussed highlights from our lives at last week’s dahlia tuber digging lunch, Martha asked how...
> > I was trying to show how different the amount of time left can be for 3 different people when they stop eating.
The writers behind this newsletter.
Once bicycled across the U.S. to attend grad school at Berkeley.
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