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Riaan's Newsletter

Riaan Research Initiative

Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org.

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Substack
PricingOnly free issuesPublishesWeekly
Issues56SubscribersRead riaanresearch.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

The Big 5: Happy Birthday, Riaan

#### Happy 5th Birthday, Riaan! Send a birthday message to Riaan through his Kudoboard here. Riaan and his entire family deeply cherish and thank you for your kind sentiments.

9 days ago
0
0

Disney Dreams with Danny

by Stephanie Tosto, Guest Post

17 days ago
0
0

The Echo That We Create

by Jo Kaur, Founder of Riaan Research Initiative

a month ago
1
1

Riaan in the Rockies!

by Jo Kaur, Founder of Riaan Research Initiative

3 months ago
1
0

Authors

The writers behind this newsletter.

  • Riaan Research Initiative

    Hunting for a cure for life-limiting genetic disorders, starting with Cockayne Syndrome (CSA/ERCC8) mutations.

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