Riaan's Newsletter
Riaan Research InitiativeSign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 52 | Subscribers | Read | riaanresearch.substack.com |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
They Speak The Language of Love
by Jo Kaur, Founder, Riaan Research Initiative
To Tube or Not To Tube?
Important Medical Disclaimer: Riaan Research Initiative does not offer medical advice nor endorse any specific medical intervention for children with Cockayne syndrome. This post is intended for informational purposes only, to share the per...
Mind, Body, and Soul
#### Lena’s son Kian passed away on December 31, 2023, just shy of his 6th birthday. Kian had Cockayne syndrome Type 2. While dealing with this immense grief, Lena bravely shares her personal reflections to shed light on a topic we don’t of...
A Mother's Day Heartbreak
by Richie DiGeorge, Co-Founder of Riaan Research Initiative
Authors
The writers behind this newsletter.
Hunting for a cure for life-limiting genetic disorders, starting with Cockayne Syndrome (CSA/ERCC8) mutations.
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