Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org.
Platform | Substack | Pricing | Only free issues | Publishes | Weekly |
---|---|---|---|---|---|
Issues | 56 | Subscribers | Read | riaanresearch.substack.com |
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#### Happy 5th Birthday, Riaan! Send a birthday message to Riaan through his Kudoboard here. Riaan and his entire family deeply cherish and thank you for your kind sentiments.
by Stephanie Tosto, Guest Post
by Jo Kaur, Founder of Riaan Research Initiative
by Jo Kaur, Founder of Riaan Research Initiative
The writers behind this newsletter.
Hunting for a cure for life-limiting genetic disorders, starting with Cockayne Syndrome (CSA/ERCC8) mutations.
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