Thoughts about making and living
Josh MollI make a lot, and I’m chronically ill with advanced neurosarcoidosis.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 72 | Subscribers | Read | breiwerken.substack.com |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
the wisdom of no escape
When I first listened to Pema Chödrön's book “The Wisdom of No Escape” it resonated deeply with me. It is not my first encounter with her writing, her books have been constant companions through my life with neurosarcoidosis.
mango
Eating a mango is such a luxurious feeling. It is magical and delicious and juicy and the color is this incredible orange that I love. I mostly eat my mango above our kitchen sink, making mmmmm noises, while gnawing away at the mango pit.
finding joy
After the shock of my sudden fall from the grace of my remission and the adjustment to the reality of my life (Brain damage!! Rehab! Needing a lot of care again. My independence gone! Learning to ride my bicycle again. Sudden exhaustion eve...
falling from grace
On July 29, I was rushed into hospital with rapidly falling eye sight and terrible head ache. It now looks like we caught the neurosarcoidosis in time, with high dosage prednisone, for it to do too much of permanent damage to my brain and e...
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Authors
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Knitter, maker, chronic advanced neurosarcoidosis, but living
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