
I make a lot, and I’m chronically ill with advanced neurosarcoidosis. I write about living with a chronic illness and my creative pursuits.
| Platform | Pricing | Only free issues | Publishes | Weekly | |
|---|---|---|---|---|---|
| Issues | 74 | Subscribers | Read | breiwerken.substack.com |
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I just turned 64. I am now older than my sister, who got killed in a car accident when she was 63. She was the middle sister of five sisters and I have been missing her. It feels weird to be older than her. But I am grateful to be alive.
Looking back on 2025, this year of highs and lows, my overall feeling is gratitude.
When I first listened to Pema Chödrön's book “The Wisdom of No Escape” it resonated deeply with me. It is not my first encounter with her writing, her books have been constant companions through my life with neurosarcoidosis.
Eating a mango is such a luxurious feeling. It is magical and delicious and juicy and the color is this incredible orange that I love. I mostly eat my mango above our kitchen sink, making mmmmm noises, while gnawing away at the mango pit.
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labyrinth creator, knitter, maker, chronic advanced neurosarcoidosis, but living
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