Wired for Hope
Allison LefrakA mother's candid account of raising a daughter with epilepsy — through brain surgery, grief, and the search for silver linings.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 14 | Founded | 7 months ago | Last Issue | 25 days ago |
| Active | |||||
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allisonlefrak.substack.comLatest Issues
Sharing Abbie’s Story Somewhere New
I first became aware of Kelly Cervantes in October 2019 when I read in the newspaper that Miguel Cervantes, the Chicago star of Hamilton, and his wife lost their nearly four-year-old daughter, Adelaide, to a severe form of childhood epileps...
Two Sundays
Last Sunday evening, I was in a state of complete panic about the week ahead. I stood frozen, staring into space and pulling at my hair — my terrible self-soothing habit — overwhelmed by all the tasks ahead of me and unsure where to begin....
Cousin Planet
Abbie and Mara
My sister, who lives in California, won’t be able to come east for the holidays this year so she planned a rare summer visit to my parents’ home in McLean, VA with her boys. As depicted in Saturday Night Live’s Cousin Planet...
Happy Father's Day
First, some good news about the Responsive Neurostimulator (RNS) device: Dr. K responded to my messages in the patient portal about Abbie’s recent seizures. He said that the RNS device detected all of the ones we recently observed within on...
After Pomp and Circumstance
As I write on this Sunday evening in the days following two graduations, I feel as if my heart is beating outside of my chest. I derive some comfort though in knowing that this feeling is not unique to me. For weeks now, my social media fee...
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| Subscribers | Engagement | 72 | Monthly Web Visits | ||
|---|---|---|---|---|---|
| Accepts Sponsors | Estimated Cost per Ad | ||||
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Authors
The writers behind this newsletter.
I'm a mom writing honestly about raising a daughter with epilepsy — through brain surgery and beyond, holding onto hope while mourning the future I once imagined for her.
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