Reletter
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Caregiving Reflections

Denise Brown

Every Sunday, Denise M. Brown writes reflections on the personal caregiving experience and how we can better support those who care for a family member.

Platform
Substack
PricingOnly free issuesPublishesTwice weekly
Issues337Founded6 years agoLast Issue10 days ago
Active

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denisebrown.substack.com
Artwork for Caregiving Reflections

Latest Issues

What’s the Value of 500 Family Caregivers?

In May, I decided to build a calculator to better understand your value. I had released other calculators as part of a care economy series to demonstrate the cost of not supporting family caregivers. The missing calculator, I decided, was t...

10 days ago
2

We Do the Work of the Systems

During one update to my dad about home health and palliative care visits for him and my mom, my dad looked at me and said:

"Isn't there someone who should be organizing this for us? Like someone with the insurance?"

"Nope," I said...

17 days ago
1

A Caregiving Comfort: Repeat

The day feels like it’s on a loop. You do the same work day in and day out.

You also may have another kind of repeat happening that can make a tough day even more difficult. You have memories of what went wrong, what you saw that broke you...

22 days ago
5
2

Our Caregiving Work, By the Numbers

After my dad’s bladder cancer diagnosis in March 2004, I regularly attended doctor’s appointments with my parents and provided emotional support to them. My dad received ongoing treatment, which he managed, for his cancer.

Because I made a...

24 days ago
3
4

Expand the CARE Act to Include an Aftercare Plan for the Family Caregiver

During an eight-month period in 2015, I managed nine discharges for my parents, which included six hospital discharges, two discharges from short-term rehab and one discharge from outpatient surgery.

That same year, the Governor of Illinoi...

a month ago

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  • Denise Brown

    I support individuals managing difficult life experiences with coaching, planning and support. I also train caregiving coaches and facilitators.

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