Every Sunday, Denise M. Brown writes reflections on the personal caregiving experience and how we can better support those who care for a family member.
| Platform |  | Pricing | Only free issues | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 339 | Founded | 6 years ago | Last Issue | 8 days ago |
| Active | |||||
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denisebrown.substack.comLatest Issues
Can We Count You In? Deadline to Tell Medicare You Deserve Support Is September 14
We asked family caregivers about their scope of work.
The results: 84.4% provide emotional support.
Family caregivers tell us they provide emotional support more than they provide personal care (57.5%).
Yet, our systems don’t provide any...
Our Systems Experience, Doodled
After my mom died, I struggled to work through my experience navigating the systems during her end of life. I’m a writer, but to make sense of this experience, I took out a Sharpie and a piece of paper to create this:
After my dad died, I...
What’s the Value of 500 Family Caregivers?
In May, I decided to build a calculator to better understand your value. I had released other calculators as part of a care economy series to demonstrate the cost of not supporting family caregivers. The missing calculator, I decided, was t...
We Do the Work of the Systems
During one update to my dad about home health and palliative care visits for him and my mom, my dad looked at me and said:
"Isn't there someone who should be organizing this for us? Like someone with the insurance?"
"Nope," I said...
A Caregiving Comfort: Repeat
The day feels like it’s on a loop. You do the same work day in and day out.
You also may have another kind of repeat happening that can make a tough day even more difficult. You have memories of what went wrong, what you saw that broke you...
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Authors
The writers behind this newsletter.
I support individuals managing difficult life experiences with coaching, planning and support. I also train caregiving coaches and facilitators.
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