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Chronic Illness & HHV-6 Report

Neenyah Ostrom

Patient experiences and research into today's immune deficiency illnesses

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Substack
PricingFreemiumPublishesWeekly
Issues120Founded4 years agoLast Issuea year ago
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Artwork for Chronic Illness & HHV-6 Report

Latest Issues

“Exhausted” Immune System Cells in ME/CFS: What’s Causing the Dysfunction?

A chronic viral infection causes the CD8+ T-cell “exhaustion” seen in ME/CFS patients—and thereby many of the physiological symptoms of ME/CFS—according to a Cornell University research team led by Andrew Grimson. (1)

“Comprehensive transc...

a year ago
11

Britain on the Verge of Criminalizing “Malingering” by ME/CFS Patients and Other Desperately Ill People

Are ME/CFS patients in England and Scotland going to be jailed if they can’t comply with forced labor? This is the stark future of health care in the UK, according to legal consultant and author David J. Black’s recent two-part editorial in...

a year ago
13

The False Equivalence of Long Covid and ME/CFS

There are many ways in which medical research changed over the last century, and one of the most important is the drop in frequency of autopsies. In the 1950s, hospital autopsies were performed in about 50% of deaths. “Today, pathologists e...

2 years ago
32
1

Alzheimer’s Drug Researcher on “Indefinite” Leave After Whistleblowers Find Fraud

The co-director of the University of Southern California’s federally funded Alzheimer’s Disease Research Center, who has been under investigation since mid-2023 for scientific fraud, has been placed on “indefinite” leave from his positions...

2 years ago
4

A Small Group of ME/CFS Patients has Damaged Joints and ... Wait, What??

A recent research report funded and conducted by investigators from the ME/CFS advocacy organization Solve M.E.— a 501(c)3 non-profit organization in Glendale, CA—looked at the correlation of a joint disease, Ehlers-Danlos Syndrome, with ME...

2 years ago
6
2

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  • Neenyah Ostrom

    30 years after I covered the CFS epidemic in NEW YORK NATIVE & wrote 3 books on it, I realized nothing has changed—I decided to re-engage. Here you will read articles, news updates, and serializations of books, about CFS & other chronic illnesses.

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