View from the Trenches of Myalgic Encephalomyelitis
Colleen Steckel: ME-ICC InfoMyalgic Encephalomyelitis is a devastating debilitating disease. Diagnosis is not to be taken lightly. I contracted ME in 1989. Not only do I battle ME, I also battle the systemic bias by advocating for better understanding.
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colleensteckelmeiccinfo.substack.co...Latest Issues
Recognizing Severe Myalgic Encephalomyelitis
People with Severe ME are some of the most amazing humans I have ever met.
The 8th of August is recognized as Severe ME day. I’m glad to see some are expanding that to the entire month of August. There is far too much to understand about t...
Wired Article Angers Patients/Advocates
While my focus for this Substack is Myalgic Encephalomyelitis as defined by the International Consensus Criteria (ME-ICC), some news items are directly related to this patient group. The following falls into that category.
A June 1st essay...
News: 2026 July 19
ME Global Chronicle issue #57
ME Global Chronicle’s (MEGC) latest issue has been published (28 June 2026). Full of news from around the world, including personal stories and updates on research affecting people with Myalgic Encephalomyelit...
Glymphatic function is disrupted in ME
Quite a few myalgic encephalomyelitis (ME) studies have been published since the beginning of the year. Most research in our field gets very little traction in the wider world of news.
I was pleased to see that research about impaired glym...
News: 2026 July 1
Before jumping into the latest news I want to share an update to the June 24, 2026 News.
After publishing the article about Institutionalization of Disabled Americans,
I came across news of pushback on the President’s memorandum which put...
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Authors
The writers behind this newsletter.
Sudden onset Myalgic Encephalomyelitis 1989. Advocating for adoption of ME-ICC to improve patient outcomes & quality research. Info includes ME/CFS, CFS, Long COVID. chronic Lyme & other marginalized diseases. Not to be considered medical advice.
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