View from the Trenches of Myalgic Encephalomyelitis
Colleen Steckel: ME-ICC InfoMyalgic Encephalomyelitis is a devastating debilitating disease. Diagnosis is not to be taken lightly. I contracted ME in 1989. Not only do I battle ME, I also battle the systemic bias by advocating for better understanding.
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colleensteckelmeiccinfo.substack.co...Latest Issues
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I wish the news coming out of U.S. Gov health agencies was better for those of us disabled by chronic illness. There are a few things happening including a proposal that could lead to institutionalizing disabled US citizens that could affec...
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Call to action
A recent article in the ME Global Chronicle, Reaching beyond the ‘bubble’: an appeal, gives information about a call to action.
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May 12, 2026 - ME awareness
Content warning - discussion of death
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In this article:
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ME Global Chronicle (MEGC) #56
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Hillary Johnson’s latest articles
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Loss of advocate David Black
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Dr. Groysman
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David Tuller - Last Berkeley Fund Raiser
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Nasal spray to treat cognition issues
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Hu...
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Authors
The writers behind this newsletter.
Sudden onset Myalgic Encephalomyelitis 1989. Advocating for adoption of ME-ICC to improve patient outcomes & quality research. Info includes ME/CFS, CFS, Long COVID. chronic Lyme & other marginalized diseases. Not to be considered medical advice.
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