View from the Trenches of Myalgic Encephalomyelitis
Colleen Steckel: ME-ICC InfoMyalgic Encephalomyelitis is a devastating debilitating disease. Diagnosis is not to be taken lightly. I contracted ME in 1989. Not only do I battle ME, I also battle the systemic bias by advocating for better understanding.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 140 | Subscribers | Read | colleensteckelmeiccinfo.substack.co... |
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Latest Issues
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Headlines about Blood Biomarker for “ME/CFS” are premature
The research paper, Development and validation of blood-based diagnostic biomarkers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) using EpiSwitch® 3-dimensional genomic regulatory immuno-genetic profiling was published on ...
Canadian Consensus Criteria (ME/CFS-CCC)
My previous article, ME-ICC Research: Yes, researchers use the ME-ICC to select patients, delved into the research that selected patients who fulfilled the ME International Criteria (ME-ICC).
ME Research Survey
I want to bring to your attention an online survey titled, “Can we reach consensus on an ME research case definition?”
News: 2025 September 4
In my previous article, Changes to US Health Agencies in 2025: Tracking info that may affect pwME, I listed links to news stories that covered changes to the US Government Health Agencies. I had hoped to continue to post about the changes a...
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Authors
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Sudden onset Myalgic Encephalomyelitis 1989. Advocating for adoption of ME-ICC to improve patient outcomes & quality research. Info includes ME/CFS, CFS, Long COVID. chronic Lyme & other marginalized diseases. Not to be considered medical advice.
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