Emerging from 10+ years of my parents' Alzheimer's and FTD while mothering two young children. Reflections on 'sandwiched' caregiving, dementia, grief and navigating the UK's social care system.
Platform | Substack | Pricing | Only free issues | Publishes | Monthly |
---|---|---|---|---|---|
Issues | 8 | Subscribers | Read | dementiasdaughter.substack.com |
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In my dishevelled school holidays era. Photo by my eldest
I’m in my old flame’s car, sitting in the passenger seat as he drives us west, far out of London, almost to the coast. We’re on our way to see our friend Mary, who once called herself his surrogate mum, who is 82 and lives in a care home be...
‘When you watch this, I will be dead,’ Paola Marra states simply at the beginning of a powerful video made by Ian Rankin and shared by Dignity in Dying, an organisation which campaigns for the right to choose assisted dying in the UK.
I found myself thinking about Mum's fiftieth birthday as mine approached. Newly separated from Dad, Mum decided to have a party at the local lido where she was a member of the swimming club. She asked her hundred guests to wear white, then ...
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Emerging from 10+ years of my parents' Alzheimer's and FTD while mothering two young children. Reflections on sandwiched caregiving, dementia, grief and navigating the UK's social care system.
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