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Rarely Typical, by Gerry Langan

Gerry Langan

Rarely Typical is a candid and hopeful space dedicated to sharing stories, helpful information, and advocacy for life with chronic illness, pulmonary hypertension, and rare diseases.

Platform
Substack
PricingOnly free issuesPublishesWeekly
Issues54Foundeda year agoLast Issue5 days ago
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Artwork for Rarely Typical, by Gerry Langan

Latest Issues

S4:E4, Chronically Ill, Chronically Inconvenienced

Nobody warns you about this part. The diagnosis is one thing. The treatment plan is one thing. But the constant, relentless, never-ending inconvenience of building your entire life around a chronic illness? That part you just have to figure...

5 days ago

Finding Purpose Where I Wasn't Looking For It

When I was diagnosed in 2018 I was not thinking about advocacy. I was not thinking about a platform or a community or what my story might mean to someone else someday. I was thinking about surviving. I was thinking about what this diagnosis...

6 days ago

Chronically Ill and Chronically Inconvenienced

I don’t think I fully understood what I was signing up for in 2018. And I know that sounds ridiculous because obviously nobody signs up for a chronic illness, but what I mean is I didn’t understand the scope of it. I understood the diagnosi...

19 days ago
2

S4:E3, Chronic Illness Patient, A Job I Never Applied For

Nobody hands you a job description when you get diagnosed with a chronic illness. One day you’re just living your life, and the next you’re coordinating care between multiple specialists, managing specialty pharmacy deliveries, navigating p...

a month ago
2

Chronic Illness patient, The Job I Never Applied For

I want to talk about something nobody tells you when you get diagnosed with a chronic illness. They tell you about the medications, the appointments, the lifestyle changes. They give you pamphlets and hotline numbers and maybe a social work...

a month ago
9

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  • Gerry Langan

    Welcome to Rarely Typical: A Space for Chronic Illness, Pulmonary Hypertension, and Rare Disease Advocacy. Disclaimer: I'm not a medical professional, just a professional patient.

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