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Rarely Typical

Gerry Langan

Rarely Typical is a candid and hopeful space dedicated to sharing stories, helpful information, and advocacy for life with chronic illness, pulmonary hypertension, and rare diseases.

Platform
Substack
PricingOnly free issuesPublishesWeekly
Issues45SubscribersRead itsgerrylangan.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

New year, New pump, Same reflections

For 2026 my word of the year is “expand”, and I mean it in all definitions of the word— I want to expand and make room for more. More easiness. More joy. More truth. More heartfelt moments. More minutes to take it all in. I want to expand m...

17 days ago
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S3:E7, Living Strong with PAH: Walking, Mental Health, and Redefining Strength, with Eric Borstein

In this amazing episode, I sit down with my friend Eric Borstein, the founder of Where Is EB?, to talk about life with Pulmonary Arterial Hypertension from a perspective the community does not often get to hear. PAH overwhelmingly affects w...

3 months ago
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S3:E6, Traveling with PAH: How Experience Builds Confidence and Freedom, with Jenna

In this episode of Rarely Typical, I sit down with my friend Jenna to talk all things traveling with Pulmonary Arterial Hypertension (PAH). When you live with a rare disease, the idea of traveling can feel overwhelming — from packing medica...

4 months ago
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S3:E5, From Primary Care to Specialist: What to expect in Your Referral Journey, with Dr. Hountras and Stacy Hountras, NP

When you’re first diagnosed—or even when something just feels “off”—your journey often starts in your primary care doctor’s office. But what happens when your primary care provider suspects something more complex and refers you to a special...

4 months ago
1
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Authors

The writers behind this newsletter.

  • Gerry Langan

    Welcome to Rarely Typical: A Space for Chronic Illness, Pulmonary Hypertension, and Rare Disease Advocacy. Disclaimer: I'm not a medical professional, just a professional patient.

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