Natasha
Writing from bed about severe ME, invisible illness, long covid, and the toxic reality of performative kindness.
| Platform |  | Pricing | Only free issues | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 8 | Founded | 2 months ago | Last Issue | 4 days ago |
| Active | |||||
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I Spent Four Years Living Lives That Never Happened
Somewhere right now, in a bedroom with the blackout curtains drawn, someone who has barely moved in years might be imagining sitting at a crowded dinner table, passing plates and laughing at a joke. From the doorway, you would see a person...
ME desperately needs a diagnostic test
Did you know researchers have been working on a blood test for ME for years? One of the most promising early findings actually came out back in 2019, and I've been digging into where that research stands now because I think more people shou...
Prove It
A child is allowed to be dependent. So is an elderly person. Who else? Someone whose disability is visible enough that people can immediately understand why they need help, perhaps, or someone with an illness so obviously terminal that no o...
PEM: The Cost of Doing Too Much
PEM is the hallmark symptom of ME/CFS, and it might be the hardest one to explain to someone who’s never experienced it.
Post-exertional malaise is the worsening of symptoms after physical, mental, or even emotional exertion, often with a...
The Very Basics Of ME/CFS/Long Covid
ME/myalgic encephalomyelitis is a neuroimmunological illness that has a low quality of life. One of the lowest QOL of all illnesses.
CFS chronic fatigue syndrome is ME.
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The writers behind this newsletter.
Writing from bed about severe ME, invisible illness, long covid, and the toxic reality of performative kindness.
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