Nina News With Love
Shakara + Nina \ud83d\udc95Mama + Baba \ud83d\udc95 Become a paid subscriber to help us pay for extra help with Nina’s special + complex needs / Trisomy 18 \ud83d\udc99
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 5 | Founded | 2 months ago | Last Issue | 18 days ago |
| Active | |||||
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ninanewswithlove.substack.comLatest Issues
The Gift of Rest 😌
Dearest friends,
I have wonderful news! Just in time for my birthday weekend 😊 We have found a second carer to join our little family! We now have both Nicola and Jaimee sharing my allotted 11 hours per week between them (and already I ha...
Happy Easter!
On Sunday we braved Storm Dave and gave Nina’s new sit up car seat a run (Thank you crowdfund friends 🤍) and drove over to Alloa to visit Nina’s friend Ayla and her mum Caroline. Ayla also has a diagnosis of Full Trisomy 18 (Edward’s syndr...
How I breastfed my ‘not expected to breastfeed’ Baby…
Nina was diagnosed with a terminal condition at 13 weeks gestation (Trisomy 18) but she survived against the odds. What’s more, she was born able to breathe room air, and with few of the more severe abnormalities associated with her conditi...
Having a baby I was told wouldn’t survive, make it to a year is something else But having a baby that survives can also come with a tremendous weight
Sharing some home realities of raising a baby with Full Trisomy 18 (Edward’s Syndrome).
Nina’s been developing UTI’s since 9 months. She’s now had 5, and it seems like a small thing, but they’re recurring and there’s nothing we can do to s...
Beauty within the brokenness
This is the cup I was gifted on leaving the NICU, two weeks after Nina was born. We’d moved from the maternity ward to a NICU family room - and though Nina was expected to need an incubator, or simply to stop breathing at any moment, neithe...
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Welcome to our Profile, we're here to share our present updates & journey so far. Subscribe to ‘Nina News with Love’ and help us raise our goal of £450 pcm in subscriptions to help with Nina’s special + complex needs / Trisomy 18 \ud83d\udc99
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