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FIRST DRAFT

Steve McBee

First Draft is where I think out loud about Solitary Fibrous Tumor (SFT), building community, sharing knowledge, empowering patients, and what it means to fight for a disease the world knows very little about.

Platform
Substack
PricingOnly free issuesPublishesWeekly
Issues14Founded2 years agoLast Issue13 days ago
Active

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Latest Issues

A Lot’s Happening in the SFT World

A few months ago, I wrote that a lot was happening in the SFT world.

There is even more happening now.

Thanks for reading FIRST DRAFT! Subscribe for free to receive new posts and support my work.

First, I want to start with the people ma...

13 days ago
8
3

Adventure for SFT #1: The Plateau Passage

If you’ve been reading First Draft for a while, you may remember the Exercisinib post, my slightly amusing name for the role exercise and adventure have played in how I live, especially with metastatic Solitary Fibrous Tumor (SFT).

That wa...

24 days ago
11

If SFT Has Touched Your Life, Please Read This

For nearly 20 years, solitary fibrous tumor has been part of my life.

I also know that, in many ways, I have been fortunate. I have had access to experienced physicians, major cancer centers, advanced treatments, and people who helped me n...

2 months ago
3

Help Us Build the Solitary Fibrous Tumor Foundation

A few years ago, I walked into MD Anderson convinced I had beaten Solitary Fibrous Tumor.

Fifteen years after diagnosis, two days after winning a 100-mile mountain run, I was sure of it.

I had not.

A 4 cm metastatic tumor on my pancreas....

4 months ago
6

FAP-Targeted Imaging and Therapy: Why SFT Patients Should Pay Attention

If you have been diagnosed with Solitary Fibrous Tumor (SFT), you probably know the usual treatment story.

Surgery when the tumor can be removed. Radiation when local control is needed. Later, if the disease spreads or progresses, a rotati...

5 months ago
4
2

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