FIRST DRAFT
Steve McBeeFirst Draft is where I think out loud about Solitary Fibrous Tumor (SFT), building community, sharing knowledge, empowering patients, and what it means to fight for a disease the world knows very little about.
| Platform |  | Pricing | Only free issues | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 9 | Founded | 2 years ago | Last Issue | 4 months ago |
| Active | |||||
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smcbee.substack.comLatest Issues
Keeping Up With SFT Research
Four Free Tools That Put You in the Loop
One of the harder things about having a rare cancer is finding the information you need when it’s scattered everywhere, in journals, on academic servers, in the heads of researchers who have no idea...
Exercisinib
The darkest moment of my cancer journey came two days after I finished on the podium of a three-day ultramarathon. I walked into a routine checkup at MD Anderson feeling invincible. I left with news that changed everything.
I should have k...
We're Here. We're Listening. We Want to Help.
Last week, my mom, a retired family physician, and a no BS, world-class SFT care giver, tried to reach out to her former colleagues at a local oncology clinic to share some information about SFT. Despite the fact that I’m a patient, and she...
Resources For Every New SFT Patient
“I have learned more about this disease, research, and treatment options from this community than from any medical practitioner.” — Lori B., SFT patient since 2023
When Lori B. was diagnosed with SFT in 2023, she was handed the di...
QoL, Prognosis, and the Research Gap
This is a review of results from a patient-organized SFT survey. It reflects our community’s experience. It is not a formal clinical study. For decisions about your own care, consult your SFT team.
Forty-eight percent of respondents...
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Subscribers, engagement, traffic and sponsorship for FIRST DRAFT.
| Subscribers | Engagement | 74 | Monthly Web Visits | ||
|---|---|---|---|---|---|
| Accepts Sponsors | Estimated Cost per Ad | ||||
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