
First Draft is where I think out loud about Solitary Fibrous Tumor (SFT), building community, sharing knowledge, empowering patients, and what it means to fight for a disease the world knows very little about.
| Platform | Pricing | Only free issues | Publishes | Weekly | |
|---|---|---|---|---|---|
| Issues | 14 | Founded | 2 years ago | Last Issue | 13 days ago |
| Active | |||||

A few months ago, I wrote that a lot was happening in the SFT world.
There is even more happening now.
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First, I want to start with the people ma...
If you’ve been reading First Draft for a while, you may remember the Exercisinib post, my slightly amusing name for the role exercise and adventure have played in how I live, especially with metastatic Solitary Fibrous Tumor (SFT).
That wa...
For nearly 20 years, solitary fibrous tumor has been part of my life.
I also know that, in many ways, I have been fortunate. I have had access to experienced physicians, major cancer centers, advanced treatments, and people who helped me n...
A few years ago, I walked into MD Anderson convinced I had beaten Solitary Fibrous Tumor.
Fifteen years after diagnosis, two days after winning a 100-mile mountain run, I was sure of it.
I had not.
A 4 cm metastatic tumor on my pancreas....
If you have been diagnosed with Solitary Fibrous Tumor (SFT), you probably know the usual treatment story.
Surgery when the tumor can be removed. Radiation when local control is needed. Later, if the disease spreads or progresses, a rotati...
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