FIRST DRAFT
Steve McBeeFirst Draft is where I think out loud about Solitary Fibrous Tumor (SFT), building community, sharing knowledge, empowering patients, and what it means to fight for a disease the world knows very little about.
| Platform |  | Pricing | Only free issues | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 11 | Founded | 2 years ago | Last Issue | 2 months ago |
| Active | |||||
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Help Us Build the Solitary Fibrous Tumor Foundation
A few years ago, I walked into MD Anderson convinced I had beaten Solitary Fibrous Tumor.
Fifteen years after diagnosis, two days after winning a 100-mile mountain run, I was sure of it.
I had not.
A 4 cm metastatic tumor on my pancreas....
FAP-Targeted Imaging and Therapy: Why SFT Patients Should Pay Attention
If you have been diagnosed with Solitary Fibrous Tumor (SFT), you probably know the usual treatment story.
Surgery when the tumor can be removed. Radiation when local control is needed. Later, if the disease spreads or progresses, a rotati...
Keeping Up With SFT Research
Four Free Tools That Put You in the Loop
One of the harder things about having a rare cancer is finding the information you need when it’s scattered everywhere, in journals, on academic servers, in the heads of researchers who have no idea...
Exercisinib
The darkest moment of my cancer journey came two days after I finished on the podium of a three-day ultramarathon. I walked into a routine checkup at MD Anderson feeling invincible. I left with news that changed everything.
I should have k...
We're Here. We're Listening. We Want to Help.
Last week, my mom, a retired family physician, and a no BS, world-class SFT care giver, tried to reach out to her former colleagues at a local oncology clinic to share some information about SFT. Despite the fact that I’m a patient, and she...
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