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Artwork for Tom’s Substack

Tom’s Substack

Tom Norris

My personal Substack - I focus on chronic pain, patient empowerment, and patient engagement in clinical trials

Platform
Substack
PricingOnly free issuesPublishesDaily
Issues194SubscribersRead tomn482171.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

To Researchers: If You Want Patients Involved, Say So

I hear researchers say they value patient engagement all the time. I believe most of them mean it.

a month ago
2
0

Research Only Matters if People Know It Exists

I am a person with lived experience (PWLE) focused on improving patient engagement in clinical trials and guideline development panels.

a month ago
1
0

The Power of Connection: Why Being Part of a Support Group Matters When You Live with Chronic Pain

> Living with chronic pain can be isolating. Friends and family often mean well, but unless they live with it every day, they can’t fully understand the relentless challenges, the fatigue, or the emotional toll. That’s where support groups—...

5 months ago
0
0

A Resource I Trust: Camden Coalition and People Living with Pain

I’ve been living with chronic pain for 37 years. That number doesn’t even sound real sometimes—but it is. And over those years, I’ve seen just how often people in pain are ignored, dismissed, or pushed to the margins.

5 months ago
1
0

Authors

The writers behind this newsletter.

  • Tom Norris

    Person with Lived Experience (PWLE) with chronic pain. Advocate for people with chronic pain, patient empowerment, and patient engagement.

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