Tom’s Substack
Tom NorrisMy personal Substack - I focus on chronic pain, patient empowerment, and patient engagement in clinical trials
| Platform |  | Pricing | Only free issues | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 192 | Subscribers | Read | tomn482171.substack.com |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
The Power of Connection: Why Being Part of a Support Group Matters When You Live with Chronic Pain
> Living with chronic pain can be isolating. Friends and family often mean well, but unless they live with it every day, they can’t fully understand the relentless challenges, the fatigue, or the emotional toll. That’s where support groups—...
A Resource I Trust: Camden Coalition and People Living with Pain
I’ve been living with chronic pain for 37 years. That number doesn’t even sound real sometimes—but it is. And over those years, I’ve seen just how often people in pain are ignored, dismissed, or pushed to the margins.
Building Bridges: How Patient Advocate Organizations and Researchers Can Work Together
For too long, clinical trials and research studies have been designed in ways that don’t always reflect the realities of the people most affected—the patients themselves. That’s starting to change, but it won’t happen fully unless we streng...
PCORnet: What It Is and Why It Matters for People Living with Chronic Pain
When we talk about research, too often it feels like something far away, done by scientists in locked labs, with little connection to what we live with every day. That’s why I want to share something important: PCORnet®, the Patient-Centere...
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Authors
The writers behind this newsletter.
Person with Lived Experience (PWLE) with chronic pain. Advocate for people with chronic pain, patient empowerment, and patient engagement.
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