Tom’s Substack
Tom NorrisMy personal Substack - I focus on chronic pain, patient empowerment, and patient engagement in clinical trials
| Platform |  | Pricing | Only free issues | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 198 | Subscribers | Read | tomn482171.substack.com |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
When Pain Walks Into the Room
She had rehearsed it in the car. The three things she wanted to say, in order. The questions she didn’t want to forget.
From Principle to Practice
In September 2025, the NIH Engaging the Public as Partners in Clinical Research (ENGAGE) Working Group released its draft report — a roadmap NIH has now formally accepted for how clinical research should partner with patients and communitie...
The Pain We Don’t See, The Data We’re Starting to Understand
Chronic pain has always lived in a difficult space.
If Patients Can’t Understand the Results, What Are We Doing?
A patient-friendly summary of a clinical trial report is exactly what it sounds like, a clear explanation of what a study was trying to do, who was involved, what was found, and what it actually means in real life.
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Authors
The writers behind this newsletter.
Person with Lived Experience (PWLE) with chronic pain. Advocate for people with chronic pain, patient empowerment, and patient engagement.
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