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Ups and Downs

Irene Sandler

Raising a son with Down Syndrome

Platform
Substack
PricingOnly free issuesPublishesMonthly
Issues11Founded5 years agoLast Issue6 months ago
Active

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Latest Issues

Pattern-making

Structure is helpful for a chap like Isaac. It tells him what’s expected, what comes next, and generally minimises confusion and delay (to quote Mr Topham Hat). After all, we humans are pattern-matching machines; patterns make us comfortabl...

6 months ago

All creatures great and small

As many of you know, we have three cats.

One norm that surprised me about London is that people mostly let their cats roam around the neighbourhood. (They also rarely leash dogs.) No petitions to save the songbirds or public service annou...

6 months ago
3

Hairy balls and other unmentionables

Note: this was written nearly four years ago! I just never managed to hit “publish.” It all still stands, though more has happened since, of course.

“Smell my armpit.”

“No thanks.”

“C’mon. Smell my armpit.”

“Honestly, Isaac, just go to...

7 months ago

Out and about

When Isaac was younger, the persistent undercurrent for any outing was an almost-crippling anxiety honed by bitter experience: would he dart off? would he smack a playmate for no reason (that we could discern)? would he eat all the cheese p...

8 months ago
4
1

Making choices

Isaac started college this month. (In the U.K., “college” refers to the last two years of secondary school, while in America, “university” and “college” are used more or less interchangeably.)

Not only does this end the era of highly struc...

8 months ago
1

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  • Irene Sandler

    Holding it together (mostly)

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