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What is ME Like

A Pillow Writers group that focuses on educating and sharing the lived experiences of Myalgic Encephalomyelitis(ME). Answering the question of What is Myalgic Encephalomyelitis Like?

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Issues8Founded4 months agoLast Issue8 days ago
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Latest Issues

Dear Healthcare Professionals

I want my GP practice to read this book so that, never again, will they be cruel and dismissive, or ever consider recommending exercise and cognitive behavioural therapy to anyone presenting with the symptoms described. I hope also that i...

8 days ago
2

Why did we write this book?

I contributed to this book because, for me, ME/CFS arrived almost overnight and took nearly everything, my career, my plans, my ability to cook or even wash and it also changed my partner’s life irrevocably, too. This is a physical illnes...

a month ago
4

Our Goal

I hope this book helps healthcare professionals, students, and policy-makers truly understand that living with ME/CFS means carrying an invisible weight; the constant calculations, the concessions in every area of life, and its carried by...

2 months ago
5

What is Myalgic Encephalomyelitis

The following is an excerpt from the WIMEL Website

ME is a multi-system, disabling, and often progressive disease that prevents those affected from performing exertion, including even the simplest activities of daily living. Basic daily...

2 months ago
4

Pillow

If you walk into my room, you will immediately be greeted by an unflattering, collage picture pillow of me asleep in odd and untimely situations. A gag gift of sorts from my parents for Christmas a couple of years prior. The words ‘Sleep is...

2 months ago
5
1

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  • What is ME Like

    A Pillow Writers group that focuses on educating and sharing the lived experiences of Myalgic Encephalomyelitis(ME). Answering the question of What is Myalgic Encephalomyelitis Like?

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