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Anne’s Substack

Strong and Rare

Here I plan to write my story about my journey with Stiff Person Syndrome, what it's like living with a rare condition and how I survive day by day.

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Substack
PricingOnly free issuesPublishesWeekly
Issues23SubscribersRead raisiebay.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

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Future Thoughts and Feelings

My future looks very different now to how I imagined it to be. When I was younger I thought that these days I would be enjoying the company of my grandchildren. Maybe even babysitting them. The truth is that I’m 99% sure my line stops here....

2 months ago
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Authors

The writers behind this newsletter.

  • Strong and Rare

    I have Stiff Person Syndrome, the same as Celine Dion, and I also have five kids (four ASD) and two cats. This is my life, how I deal with this debilitating condition and continue to care for my family.

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