Anne’s Substack
Strong and RareHere I plan to write my story about my journey with Stiff Person Syndrome, what it's like living with a rare condition and how I survive day by day.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 51 | Subscribers | Read | raisiebay.substack.com |
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Latest Issues
Recent posts by this newsletter. Browse the email archive.
Clothing When You Are Sick
I get up every day and my clothes are very similar. I wear trousers, cotton, soft, elasticated waist but not too tight but looser on the legs and definitely wider at the bottom.
Feeling sick when you are Chronically Ill
Sometimes I think I shouldn’t complain. I know I’m not the only one and I know that people have it worse than me. And I truly feel for people who have to care for sick people.
Facing The Future
I saw my consultant yesterday. I’ve been seeing the same one for 8 years now. He’s been a great consultant. He always listens to my concerns, he checks that I’m on the right medication. If I wish to change my medication he listens to me and...
Is it Neglect?
I’m a disabled Mum. I wasn’t always disabled, my youngest three children were four seven and nine when I got sick. Before that we had such fun, we were always at the park, baking, crafting, playing games, going out, we had a blast. But then...
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Authors
The writers behind this newsletter.
I have Stiff Person Syndrome, the same as Celine Dion, and I also have five kids (four ASD) and two cats. This is my life, how I deal with this debilitating condition and continue to care for my family.
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