Anne’s Substack
Strong and RareHere I plan to write my story about my journey with Stiff Person Syndrome, what it's like living with a rare condition and how I survive day by day.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 58 | Founded | 3 years ago | Last Issue | 6 months ago |
| Active | |||||
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I Went to See My Consultant and He told me I was old!
Should age be a factor in helping people? I felt like I was getting old when I reached 50 but I was fit and healthy. I was running around after 3 young children and helping so many others. I was the only driver in the house and forever runn...
Pins and Needles and a Little bit of Treacle
I see things in my kids I never noticed in myself. As a carer for my 20 year old I see her spasm. They are so familiar to me. I have spasms too. For her they are only bladder spasms, but she finds them painful and uncomfortable. I have had...
How Does Your Garden Grow!
Before I became disabled 9 years ago I was a fairly decent gardener. In my old home (we moved 12 years ago) I had a tiered garden with flowers, trees, patio, and a small front garden full of the most fragrant rose bushes. I loved my garden....
Not feeling well when not feeling well.
I’ve had a bad weekend. It started with stress which kept me awake all night on Friday. Then Saturday I was just miserable but I carried on.
But, did I. Actually no I didn’t. I didn’t do anything. I sat on the sofa, moving occasionally to...
It's Been A While, I thought I'd tell you about my holiday
We didn’t go anywhere last year so we were so excited to go on holiday this year. Last time the holiday had been booked and we were due to go just 3 weeks before my husband walked out on me.
My son said not to give up, book train tickets...
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Authors
The writers behind this newsletter.
I have Stiff Person Syndrome, the same as Celine Dion, and I also have five kids (four ASD) and two cats. This is my life, how I deal with this debilitating condition and continue to care for my family.
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