Between the Beats
Research translator for families of CHD/cCHD children. Mom to a cCHD child. 3 Master's Degrees + 25yrs experience in international project finance/risk assessment/strategy. Willing to become a student of the thing I am called to build.
| Platform |  | Pricing | Freemium | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 43 | Founded | 5 months ago | Last Issue | 4 days ago |
| Active | |||||
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betweenthebeats.substack.comLatest Issues
The Pulse Weekly Roundup: July 13-17, 2026
1. Building Local Capacity Seen as Key to Sustainable Cardiac Care
Date: July 13, 2026 Tags: 🏥 Clinical / 🌍 Global Source: Capital Ethiopia
“We do missions to stop missions.” Five words that say everything.
Capital Ethiopia reports...
The Pulse Weekly Roundup -- July 6-10, 2026
1. Hawaii’s Only Full-Time Pediatric Heart Surgeon Says Early Diagnosis Helps Keep Kids Close to Home
Date: July 8, 2026 Tags: 🏥 Clinical / 💛 Community Source: Hawaii News Now
Cardiac care is about more than the surgery. It’s about...
🕵🏻♀️ DEBUNKED: The Telephone Game - CHD Edition.
Photo by Kevin Grieve on Unsplash
I almost scrolled past it.
My Google alert for “congenital heart disease” pinged this morning the way it does every day; I scanned the headlines, and one from a Kenyan outlet called Streamline stopped me...
🔬DECODED: Pediatric Medical Trauma Stress
Tell me if you know this one.
You’re sitting in the cardiology waiting room for a routine appointment for your child. The last echo looked good and there’s no obvious reason to believe today will be any different. And still, your jaw is ti...
DECODED: The “Failing Fontan”
Ok y’all, I asked - you answered! So this one is for Nicole, who wanted to know more about the failing Fontan. 💗
The first time I heard the phrase “failing Fontan,” nobody sat me down and formally announced it. It arrived the way many fri...
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Authors
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Fontan mom. Research translator for fellow CHD families. One article at a time, and altogether now.
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