Between the Beats
Research translator for families of CHD/cCHD children. Mom to a cCHD child. 3 Master's Degrees + 25yrs experience in international project finance/risk assessment/strategy. Willing to become a student of the thing I am called to build.
| Platform |  | Pricing | Freemium | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 39 | Founded | 5 months ago | Last Issue | 5 days ago |
| Active | |||||
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betweenthebeats.substack.comLatest Issues
DECODED: The “Failing Fontan”
Ok y’all, I asked - you answered! So this one is for Nicole, who wanted to know more about the failing Fontan. 💗
The first time I heard the phrase “failing Fontan,” nobody sat me down and formally announced it. It arrived the way many fri...
The Missing Link Between Your Child’s Gut and Their Brain
If you’ve been following this space for a while, you’ve read me talk about 2 things that might have seemed like separate stories.
One is the brain. The neurodevelopmental differences that show up in CHD kids: the cognitive patterns, the at...
🔎 DECODED: Perfusion
This one concept connects your CHD child's liver results, exercise tolerance, brain development, and half of what the cardiologist monitors. Here's how to see it.
I need to talk about a word that has been driving me up the wall (remember P...
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🔬DECODED: The CHD Gut Microbiome
Image source: @3tnik on Unsplash.
On Monday morning this week, bright and early and armed with a strong cup of coffee, I was four articles deep into a research rabbit hole prompted by one of my Google alerts, my laptop balanced on m...
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| Subscribers | Engagement | 73 | Monthly Web Visits | ||
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Authors
The writers behind this newsletter.
Fontan mom. Research translator for fellow CHD families. One article at a time, and altogether now.
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