Brainstorm Health
Jason Binder, Rebekah O'Dell, Angeline Giammona, Erica Olenski, BCPA, CPXP, Douglas Schoenberg, Erika Butler, Linda XuBrainstorm Health is where lived experience meets understanding. We explore the real questions, patterns, and moments that emerge for patients and caregivers navigating serious illness—and what they reveal about how support can be better designed.
| Platform |  | Pricing | Freemium | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 159 | Founded | 2 years ago | Last Issue | 3 days ago |
| Active | |||||
Read this Newsletter
brainstormhealth.substack.comLatest Issues
Stable Is Not the Same as Fine
We live scan to scan. If you’ve walked this road, you know exactly what that means.
You’d think the waiting gets easier with time. It doesn’t.
The Quiet Disappearance of Everyday Affection
There is a loss that almost never gets talked about in glioblastoma. It isn’t found on a symptom checklist or measured in a quality-of-life survey. It doesn’t show up on an MRI or in a clinic note. Yet across thousands of conversations we’v...
The Relationship Complexity No One Talks About
Glioblastoma does not arrive into perfect relationships.
It arrives into marriages where there was already emotional distance. Relationships where one person was never truly present. Families carrying old wounds that were never healed. Par...
Glioblastoma Doesn’t Need One Better Drug. It Needs a Better Strategy.
Every few weeks there’s another headline announcing a potential breakthrough for glioblastoma. Families living with this disease have learned to read those stories carefully. Most begin with promising results in mice. Few ultimately become...
The Avastin Decision Is Rarely About Avastin
In glioblastoma, treatment decisions are often described as if they happen in a clean sequence.
The scan shows progression. The oncologist explains the options. The family weighs the evidence. A decision is made.
That is not what the deci...
Audience Metrics
Subscribers, engagement, traffic and sponsorship for Brainstorm Health.
| Subscribers | Engagement | 73 | Monthly Web Visits | ||
|---|---|---|---|---|---|
| Accepts Sponsors | Estimated Cost per Ad | ||||
Chart Rankings
How this newsletter ranks in the official Substack charts.
| #240 |
Authors
The writers behind this newsletter.
Jason Binder is a caregiver, patient advocate, and healthcare leader who created the GBM Companion after his wife’s diagnosis to provide trusted, compassionate support for others facing glioblastoma.
Teacher, Author, Consultant
Mother, caregiver, and product marketing leader writing about serious illness, decision-making under pressure, and the invisible labor families carry. Co-founder of Ember, building new ways to support what happens between appointments.
I’m Erica Olenski, a healthcare strategist, entrepreneur, caregiver, and advocate. I write about healthcare innovation, leadership, and how lived experience should shape what we build next.
Douglas Schoenberg is the CEO of SofterWare. His wife, Lisa Schoenberg was diagnosed with GBM in August of 2024. Since Lisa’s diagnosis the Schoenberg’s new mission in life is improving the treatments and resources available for GBM patients.
Brain Tumor Advocate & Mentor | Patient Experience Consultant | Inspiring Resilience & Hope
Retired Fortune 500 executive, writer, and competitive Latin dancer navigating life with her husband’s glioblastoma. Founder of Still Here — GBM Long Term Survivors & Caregivers. Querying a memoir under pen name Lydia Young.
Frequently Asked Questions
How can I access the email archive for Brainstorm Health?
You can find recent issues that have been published by Brainstorm Health on Reletter by scrolling up to where it says Latest Issues. Tap on the link for any of the most recent emails or hit More Issues to see older ones.
How many subscribers does Brainstorm Health have?
To see how many people subscribe to Brainstorm Health, simply upgrade your Reletter account. We provide readership numbers and lots of other stats for this newsletter so you can decide if it's worth reaching out to.
How can I advertise in Brainstorm Health?
Newsletter advertising can be extremely effective when it's done right. Before you pitch Brainstorm Health as a potential sponsor or partner, make sure that you've done your research and checked its newsletter stats with Reletter.
Then, personalize one of our winning pitching templates and send it to the right person using the contact info provided.
How much does it cost to sponsor a publication like Brainstorm Health?
Newsletter ad rates (or CPM) vary depending on many factors, including industry, number of subscribers, open rate, ad placement and more.
To find out how much an ad will cost, contact Brainstorm Health using the contact information provided and ask for a copy of their media kit.
How can I find newsletters related to Brainstorm Health?
Scroll up to where it says Related Newsletters to see other publications like Brainstorm Health. You can also search our email newsletter directory to discover other newsletters that cover the topics you're interested in.
How do I contact Brainstorm Health?
Reletter provides this newsletter's website URL above, where you will often find their contact information. We also provide links to associated social media accounts and pitching templates so you can reach out fast.