Brainstorm Health
Jason Binder, Rebekah O'Dell, Angeline Giammona, Erica Olenski, BCPA, CPXP, Douglas Schoenberg, Erika ButlerBrainstorm Health is where lived experience meets understanding. We explore the real questions, patterns, and moments that emerge for patients and caregivers navigating serious illness—and what they reveal about how support can be better designed.
| Platform |  | Pricing | Freemium | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 153 | Founded | 2 years ago | Last Issue | 4 days ago |
| Active | |||||
Read this Newsletter
brainstormhealth.substack.comLatest Issues
What This GBM Trial Reveals About the Missing Layer in Study Design
A Phase I glioblastoma trial can look complete on paper. The mechanism is defined. Safety windows are set. Imaging is scheduled. Adverse events are graded.
Then the patient goes home.
We reviewed a Phase I study of gene-modified γδ T cell...
What GBM Families Can Teach Pharma
GBM drug development is hard because the biology is hard.
That will always be true.
Glioblastoma grows fast. It adapts. It infiltrates. It recurs. It resists clean answers. The science is difficult, the timelines are unforgiving, and ever...
For Better or Worse, and After #1 - Our Stories
Before there were conversations about grief, there were marriages. Before there was loss, there was hope.
In the first episode of For Better or Worse, and After, Jason Binder and Rebekah O’Dell share the stories they have never told from b...
The Caregiver Is Infrastructure
GBM care depends on people the system does not fully count.
GBM care depends on people the system does not fully count.
What 4,028 GBM Conversations Reveal About the Real Patient Journey
The official GBM journey has a shape.
The official GBM journey has a shape.
Audience Metrics
Subscribers, engagement, traffic and sponsorship for Brainstorm Health.
| Subscribers | Engagement | 73 | Monthly Web Visits | ||
|---|---|---|---|---|---|
| Accepts Sponsors | Estimated Cost per Ad | ||||
Chart Rankings
How this newsletter ranks in the official Substack charts.
| #246 |
Authors
The writers behind this newsletter.
Jason Binder is a caregiver, patient advocate, and healthcare leader who created the GBM Companion after his wife’s diagnosis to provide trusted, compassionate support for others facing glioblastoma.
Teacher, Author, Consultant
Mother, caregiver, and product marketing leader writing about serious illness, decision-making under pressure, and the invisible labor families carry. Co-founder of Ember, building new ways to support what happens between appointments.
I’m Erica Olenski, a healthcare strategist, entrepreneur, caregiver, and advocate. I write about healthcare innovation, leadership, and how lived experience should shape what we build next.
Douglas Schoenberg is the CEO of SofterWare. His wife, Lisa Schoenberg was diagnosed with GBM in August of 2024. Since Lisa’s diagnosis the Schoenberg’s new mission in life is improving the treatments and resources available for GBM patients.
Brain Tumor Advocate & Mentor | Patient Experience Consultant | Inspiring Resilience & Hope
Frequently Asked Questions
How can I access the email archive for Brainstorm Health?
You can find recent issues that have been published by Brainstorm Health on Reletter by scrolling up to where it says Latest Issues. Tap on the link for any of the most recent emails or hit More Issues to see older ones.
How many subscribers does Brainstorm Health have?
To see how many people subscribe to Brainstorm Health, simply upgrade your Reletter account. We provide readership numbers and lots of other stats for this newsletter so you can decide if it's worth reaching out to.
How can I advertise in Brainstorm Health?
Newsletter advertising can be extremely effective when it's done right. Before you pitch Brainstorm Health as a potential sponsor or partner, make sure that you've done your research and checked its newsletter stats with Reletter.
Then, personalize one of our winning pitching templates and send it to the right person using the contact info provided.
How much does it cost to sponsor a publication like Brainstorm Health?
Newsletter ad rates (or CPM) vary depending on many factors, including industry, number of subscribers, open rate, ad placement and more.
To find out how much an ad will cost, contact Brainstorm Health using the contact information provided and ask for a copy of their media kit.
How can I find newsletters related to Brainstorm Health?
Scroll up to where it says Related Newsletters to see other publications like Brainstorm Health. You can also search our email newsletter directory to discover other newsletters that cover the topics you're interested in.
How do I contact Brainstorm Health?
Reletter provides this newsletter's website URL above, where you will often find their contact information. We also provide links to associated social media accounts and pitching templates so you can reach out fast.