Brainstorm Health is where lived experience meets understanding. We explore the real questions, patterns, and moments that emerge for patients and caregivers navigating serious illness—and what they reveal about how support can be better designed.
| Platform |  | Pricing | Freemium | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 142 | Founded | 2 years ago | Last Issue | 6 days ago |
| Active | |||||
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brainstormhealth.substack.comLatest Issues
Early Engagement Is Good. Continuous Engagement Is Better.
Bristol Myers Squibb recently published a white paper on early patient engagement in drug development. At its core is a simple but important idea: patients, caregivers, and advocacy organizations should be involved before key decisions are...
Every Person Saw One Version of Me
The weight of caregiving isn’t invisible because it’s small. It’s invisible because it’s everywhere.
Nobody warned me that caregiving would mean becoming the keeper of the full picture. Not just the medical picture, the life picture. The d...
The Future of Oncology AI Isn’t Intelligence. It’s Access.
After a weekend at ASCO, I finally had a chance to come home.
Before opening my laptop, I planted an apple tree, a pollinator tree, and a nitrogen-fixing redbud. I watered a young maple, fed the goats, and walked around the farm. Only then...
What We’re Learning From 44,157 Messages
A private field report for the people helping us build Ember.
There’s a moment that happens after almost every serious diagnosis.
Healthcare's Next Support Layer May Be Cognitive
I ask a question in nearly every keynote I give: “if the patient survives, but the caregiver develops chronic illness in the process, or worse, should anyone call that a success?”
The answer is obviously no. And yet healthcare systems rare...
Audience Metrics
Subscribers, engagement, traffic and sponsorship for Brainstorm Health.
| Subscribers | Engagement | 73 | Monthly Web Visits | ||
|---|---|---|---|---|---|
| Accepts Sponsors | Estimated Cost per Ad | ||||
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How this newsletter ranks in the official Substack charts.
| #243 |
Authors
The writers behind this newsletter.
Jason Binder is a caregiver, patient advocate, and healthcare leader who created the GBM Companion after his wife’s diagnosis to provide trusted, compassionate support for others facing glioblastoma.
Teacher, Author, Consultant
Mother, caregiver, and product marketing leader writing about serious illness, decision-making under pressure, and the invisible labor families carry. Co-founder of Ember, building new ways to support what happens between appointments.
I’m Erica Olenski, a healthcare strategist, entrepreneur, caregiver, and advocate. I write about healthcare innovation, leadership, and how lived experience should shape what we build next.
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