Brainstorm Health
Jason Binder, Rebekah O'Dell, Angeline Giammona, Linda Xu, Sal SchitoBrainstorm Health is where lived experience meets understanding. We explore the real questions, patterns, and moments that emerge for patients and caregivers navigating serious illness—and what they reveal about how support can be better designed.
| Platform |  | Pricing | Freemium | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 179 | Founded | 2 years ago | Last Issue | 3 days ago |
| Active | |||||
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brainstormhealth.substack.comLatest Issues
When Zero Doesn’t Mean Nothing: The Hidden Distress of Cancer Patients
A cancer patient arrives at the clinic for another appointment.
They’ve spent the past week worrying about a scan, struggling with treatment side effects, or wondering how much time they have left. Maybe they’re trying to decide whether an...
10 controversial findings hiding in Ember’s GBM data
I think Ember has the potential to challenge several assumptions that oncology, pharma, and patient advocacy organizations have accepted for years.
I think Ember has the potential to challenge several assumptions that oncology, pharma, and...
The Economics of Cancer Navigation Are Changing
AI could help cancer organizations serve more patients without adding staff at the same rate. We have evidence that families will use it. Now we need to measure its impact.
When my wife Tracy was diagnosed with glioblastoma in 2022, I had...
What I Meant by Precision Empathy
Three weeks ago I used a term and then deliberately declined to define it.
I wrote that we had started calling something Precision Empathy, and that I was leaving it unfinished, because I didn’t think the interesting part was another defin...
Not Everyone Gets This
The person who understood what we were carrying wasn’t on her care team.
Toward the end of my mom’s life she went to the ER once a week for six weeks straight. Sometimes it was me and my dad panicking about vomiting or disorientation, some...
Key Facts
Audience Metrics
Subscribers, engagement, traffic and sponsorship for Brainstorm Health.
| Subscribers | Engagement | 72 | Monthly Web Visits | ||
|---|---|---|---|---|---|
| Accepts Sponsors | Estimated Cost per Ad | ||||
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Authors
The writers behind this newsletter.
Jason Binder is a caregiver, patient advocate, and healthcare leader who created the GBM Companion after his wife’s diagnosis to provide trusted, compassionate support for others facing glioblastoma.
Teacher, Author, Consultant
Mother, caregiver, and product marketing leader writing about serious illness, decision-making under pressure, and the invisible labor families carry. Co-founder of Ember, building new ways to support what happens between appointments.
Retired Fortune 500 executive, writer, and competitive Latin dancer navigating life with her husband’s glioblastoma. Founder of Still Here — GBM Long Term Survivors & Caregivers. Querying a memoir under pen name Lydia Young.
GBM advocate, storyteller, founder of Make Your Mark, and Certified Peer-to-Peer Grief Educator. Honoring my wife Karen’s life by turning grief into purpose and fighting for families affected by glioblastoma.
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