Brainstorm Health
Jason Binder, Rebekah O'Dell, Angeline Giammona, Linda Xu, Sal SchitoBrainstorm Health is where lived experience meets understanding. We explore the real questions, patterns, and moments that emerge for patients and caregivers navigating serious illness—and what they reveal about how support can be better designed.
| Platform |  | Pricing | Freemium | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 174 | Founded | 2 years ago | Last Issue | 3 days ago |
| Active | |||||
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brainstormhealth.substack.comLatest Issues
The Diagnosis Was Delayed. The Patient Knew Something Was Wrong.
There is a particular kind of exhaustion that comes from knowing something is wrong and not being able to get anyone to see it. Another appointment. Another explanation. Another treatment that doesn’t work. Maybe it’s aging. Maybe it’s stre...
The Clinical Trial Ends. The Patient Questions Don’t.
What new Phase 3 brain tumor results reveal about the distance between clinical evidence and the decisions families face.
What new Phase 3 brain tumor results reveal about the distance between clinical evidence and the decisions families f...
For Better or Worse, and After #2
Glioblastoma doesn’t only affect the person with the diagnosis. It can slowly change the relationship around them too.
In the second episode of For Better or Worse, and After, Jason Binder and Rebekah O’Dell talk about one of the hardest p...
We Thought We Were Building a Companion. We Built an Observatory.
For years, medicine has been getting better at seeing cancer. We can see tumors in extraordinary detail. We sequence them, measure them, classify mutations, track blood counts, progression, toxicity and survival. Increasingly, we can combin...
Introducing Kindling
If you’re living through a serious illness or loving someone through it, you know what it’s like to have so many roles and all the performance around it.
For them you’re fine. For the kids everything’s going to be okay. At work you’re hang...
Key Facts
Audience Metrics
Subscribers, engagement, traffic and sponsorship for Brainstorm Health.
| Subscribers | Engagement | 73 | Monthly Web Visits | ||
|---|---|---|---|---|---|
| Accepts Sponsors | Estimated Cost per Ad | ||||
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Authors
The writers behind this newsletter.
Jason Binder is a caregiver, patient advocate, and healthcare leader who created the GBM Companion after his wife’s diagnosis to provide trusted, compassionate support for others facing glioblastoma.
Teacher, Author, Consultant
Mother, caregiver, and product marketing leader writing about serious illness, decision-making under pressure, and the invisible labor families carry. Co-founder of Ember, building new ways to support what happens between appointments.
Retired Fortune 500 executive, writer, and competitive Latin dancer navigating life with her husband’s glioblastoma. Founder of Still Here — GBM Long Term Survivors & Caregivers. Querying a memoir under pen name Lydia Young.
GBM advocate, storyteller, founder of Make Your Mark, and Certified Peer-to-Peer Grief Educator. Honoring my wife Karen’s life by turning grief into purpose and fighting for families affected by glioblastoma.
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