Brainstorm Health
Jason Binder, Rebekah O'Dell, Angeline Giammona, Desiree ReinkenBrainstorm Health is where lived experience meets understanding. We explore the real questions, patterns, and moments that emerge for patients and caregivers navigating serious illness—and what they reveal about how support can be better designed.
| Platform |  | Pricing | Freemium | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 136 | Founded | 2 years ago | Last Issue | 7 days ago |
| Active | |||||
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brainstormhealth.substack.comLatest Issues
Medicine Sees Patients During Appointments. Illness Happens the Rest of the Time.
I read a paper this week in the Journal of Participatory Medicine that quietly described one of the biggest blind spots in modern healthcare.
Not a scientific blind spot.
A human one.
The paper argues that healthcare systems still strugg...
The Longest Two Weeks
There is a stretch of time between finding the tumor and getting through the first fourteen days that barely feels real afterward.
People talk about the diagnosis.
People talk about surgery.
People talk about recurrence.
But those fir...
The invisible work families carry after diagnosis
The moment itself is usually strangely ordinary. You are standing in a hallway, or sitting in a parking garage, or holding a paper cup of coffee that has already gone cold. Someone says a word you have never imagined would belong to your li...
What Families Actually Trade Away—But Never Say Out Loud
Most families facing glioblastoma are never asked to make the decisions that actually define their experience.
They’re asked about treatments.
They’re asked about scans.
They’re asked about options.
BrainStorm Health is a reader-suppo...
We Are Not Trying to Replace the Dead
In the film Tron: Ares, a woman grieving the loss of her sister to glioblastoma turns to artificial intelligence to stay connected to her. The premise feels futuristic on the surface, wrapped in neon grids and digital worlds. But beneath th...
Audience Metrics
Subscribers, engagement, traffic and sponsorship for Brainstorm Health.
| Subscribers | Engagement | 73 | Monthly Web Visits | ||
|---|---|---|---|---|---|
| Accepts Sponsors | Estimated Cost per Ad | ||||
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| #245 |
Authors
The writers behind this newsletter.
Jason Binder is a caregiver, patient advocate, and healthcare leader who created the GBM Companion after his wife’s diagnosis to provide trusted, compassionate support for others facing glioblastoma.
Teacher, Author, Consultant
Mother, caregiver, and product marketing leader writing about serious illness, decision-making under pressure, and the invisible labor families carry. Co-founder of Ember, building new ways to support what happens between appointments.
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