Enduring Advocacy
Christine Von RaesfeldA unique perspective from a lifelong patient navigating multiple health conditions. Through insightful conversations and meaningful connections, this blog aims to drive change and advocate for patient-centric solutions in healthcare
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 24 | Founded | 3 years ago | Last Issue | 9 days ago |
| Active | |||||
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christinevonraesfeld.substack.comLatest Issues
Blind Trust
“You’re at risk for sudden death.”
That was the call that changed everything and those words echo in my head almost every single day. It came after months of fighting for a diagnosis that no one seemed willing to see. I had been in and out...
Patients Are Already Doing the Work
What counts as work? This illustration traces the often-unseen labor patients perform every day—from managing symptoms and coordinating care to generating the data that increasingly powers healthcare innovation and artificial intelligence....
The Record Says One Thing. My Body Says Another.
When the Record Stops Looking Like the Patient
Lately, I’ve been hearing a lot of talk about clinical trial matching using electronic health record (EHR) systems. The idea sounds promising; Researchers can identify patients faster, Patient...
The Binder on My Grandfather’s Desk
I never really got the chance to know my grandfather the way I wish I had. When I was young, he held political office, and and in that era, that meant children were kept at a respectful distance. Public service demanded a kind of formality...
Real-World Data Needs Real-World Doctors
Detection happens in real time. Care does not.
Healthcare can now detect problems earlier than ever before. Continuous monitors track heart rhythms for weeks, wearables capture subtle shifts throughout the day, and algorithms analyze real-...
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| Subscribers | Engagement | 69 | Monthly Web Visits | ||
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Authors
The writers behind this newsletter.
Personal essays on how we live, relate, and make meaning in complex systems.
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