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Patient No More

Helene M. Epstein

PATIENT NO MORE is a healthcare survival resource for patients, written by a national advocate for patients and a healthcare journalist. THE ADVOCATES is a new series of short, informative on-camera interviews with people who are working to fix healthcare

Platform
Substack
PricingFreemiumPublishesWeekly
Issues50Founded3 years agoLast Issue10 days ago
Active

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helenemepstein.substack.com
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Latest Issues

Eric Topol Just Turned My World Topsy-Turvy

I just learned something from ’s recent post on medical use of AI (see below) that has shocked me. He wrote about the extraordinary diagnostic data trained AI can glean from simple retinal scans.

Amazing news! Yet, I hyperfocused on one e...

10 days ago
7
8

From Cancer Survivor to Leader Of A Patient Revolution

Warning: Some strong language and some stronger ideas.

[00:00:00] Helene: Matthew Zachary has always exceeded expectations. He survived a brain tumor at 21 when he was told he had months to live. At the time, there was little peer support...

20 days ago
3
4

Meet The Spooniverse, Where Patients Learn About The Diseases Their Doctors Didn't Study In Medical School.

There is a hidden world with its own language that no one wants to join yet millions of us are members. And the password is “spoonie.”

About 75% of Americans have at least one chronic illness, many of which are common and easy to identify....

a month ago
27
14

Her Pregnancy Caused Her Heart Failure. What Mothers Need to Know.

You can listen to this interview, here or on your phone, read it or both.

[00:00:00] Helene: Welcome to Patient No More presents THE ADVOCATES! A few times a month, I’m interviewing the folks who are working to fix American Healthcare...

a month ago
3
5

For 30 Years, Ilene Corina Has Taught Us How to Advocate For Ourselves and She's Just Getting Started.

After 30 years of communicating, training, teaching and sharing the most important elements of patient safety and advocacy, Ilene Corina is not done. There’s so much more for all of us to learn and share with one another. At Corina’s Pulse...

2 months ago
2

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  • Helene M. Epstein

    Healthcare journalist. National advocate for patients and families. Advisor to clinical and medical studies. Sharing healthcare survival tips I’ve learned as a caregiver, researcher, parent and patient.

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