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Ground Level

Denise Servais

An honest space for parents and caregivers in the disability and complex-needs world to feel seen, supported, and less alone.

Platform
Substack
PricingOnly free issuesPublishesWeekly
Issues25Founded10 months agoLast Issue5 days ago
Active

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deniseservais.substack.com
Artwork for Ground Level

Latest Issues

Objectively Speaking

Every year, a social worker comes to our house to determine how much support my adult daughter needs.

Maya has Prader-Willi syndrome and autism. She cannot safely be left alone and none of that changes from year to year. What does change,...

5 days ago
22
10

The Limits of a Master's Degree

I hid the cookies in the laundry room because I thought I was being smart.

This should tell you how the story ends.

My daughter Maya has Prader-Willi Syndrome, which means food is never just food in our house. The cabinets are locked, bec...

13 days ago
41
25

I Thought I Was Leaving a Job. I Was Leaving a Version of Myself.

I thought the hardest part of leaving my job as a school speech-language pathologist after 22 years would be packing up my office.

I was wrong.

The hard part was standing in a room full of therapy materials, cardboard boxes, and memories...

a month ago
47
37

Well, That Was Unexpected

“Well, that was unexpected,” Maddie said.

We were in a doctor’s office, and I had brought all three girls with me so Mallory could get a shot.

Already, this was not my finest logistical decision.

Taking three young kids to a medical appo...

a month ago
31
26

Two Minutes to Explain a Life

Last week, I went to Washington, D.C. to talk about policy.

What I really had to explain was my daughter.

I got two minutes.

The meetings were scheduled for twenty to thirty minutes, which sounds like enough time until you realize there...

2 months ago
37
26

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Authors

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  • Denise Servais

    I write about resilience, caregiving, grief, love, and the messy middle of being human, from my life as a mom raising a daughter with Prader-Willi Syndrome. This space is for anyone learning to live inside a life they didn’t plan for.

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