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Ground Level

Denise Servais

An honest space for parents and caregivers in the disability and complex-needs world to feel seen, supported, and less alone.

Platform
Substack
PricingOnly free issuesPublishesWeekly
Issues21Founded9 months agoLast Issue12 days ago
Active

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deniseservais.substack.com
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Latest Issues

Two Minutes to Explain a Life

Last week, I went to Washington, D.C. to talk about policy.

What I really had to explain was my daughter.

I got two minutes.

The meetings were scheduled for twenty to thirty minutes, which sounds like enough time until you realize there...

12 days ago
35
26

It Made Me a Better Person. I’m Not So Sure.

“Having a special needs child has made me a better person,” the woman sitting across from me shared.

I went to a parent retreat this past weekend, where we sat in a circle that felt both comforting and honest.

She spoke beautifully and th...

a month ago
23
24

It Must Be Nice to Just Say Yes

“We decided to take the kids on a weekend trip tomorrow.”

I had been walking my dog when I ran into an acquaintance, I’ll call her Sara.

She said it like it was nothing. No hesitation, calculation or backup plan.

I stood there, nodding l...

a month ago
44
21

She Said She Was Hungry. I Still Said No.

The expression on the woman’s face shifted from curiosity to something else. Not one of concern, but something closer to judgment.

We were at the grocery store when Maya told me she was hungry and wanted to eat.

I told her no, that it was...

a month ago
48
30

She Was the Easy One

I tracked one child’s progress in data points.
The other child’s progress was measured in how long she could sit in a waiting room.

I have three daughters. One of them has significant needs. For context, my daughter Maya has Prader-Willi...

2 months ago
52
32

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Authors

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  • Denise Servais

    I write about resilience, caregiving, grief, love, and the messy middle of being human, from my life as a mom raising a daughter with Prader-Willi Syndrome. This space is for anyone learning to live inside a life they didn’t plan for.

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