
An honest space for parents and caregivers in the disability and complex-needs world to feel seen, supported, and less alone.
| Platform | Pricing | Only free issues | Publishes | Weekly | |
|---|---|---|---|---|---|
| Issues | 25 | Founded | 10 months ago | Last Issue | 5 days ago |
| Active | |||||

Every year, a social worker comes to our house to determine how much support my adult daughter needs.
Maya has Prader-Willi syndrome and autism. She cannot safely be left alone and none of that changes from year to year. What does change,...
I hid the cookies in the laundry room because I thought I was being smart.
This should tell you how the story ends.
My daughter Maya has Prader-Willi Syndrome, which means food is never just food in our house. The cabinets are locked, bec...
I thought the hardest part of leaving my job as a school speech-language pathologist after 22 years would be packing up my office.
I was wrong.
The hard part was standing in a room full of therapy materials, cardboard boxes, and memories...
“Well, that was unexpected,” Maddie said.
We were in a doctor’s office, and I had brought all three girls with me so Mallory could get a shot.
Already, this was not my finest logistical decision.
Taking three young kids to a medical appo...
Last week, I went to Washington, D.C. to talk about policy.
What I really had to explain was my daughter.
I got two minutes.
The meetings were scheduled for twenty to thirty minutes, which sounds like enough time until you realize there...
Subscribers, engagement, traffic and sponsorship for Ground Level.
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The writers behind this newsletter.
I write about resilience, caregiving, grief, love, and the messy middle of being human, from my life as a mom raising a daughter with Prader-Willi Syndrome. This space is for anyone learning to live inside a life they didn’t plan for.
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