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Artwork for 📝 Notes from an MS Lifer

📝 Notes from an MS Lifer

Jane Harrison

Hard truths, good vibes, and lame jokes in monthly-ish essays about life with Multiple Sclerosis. For folks with MS, those who love them, and anyone with an interest in disability, chronic illness and dealing with change.

Platform
Substack
PricingOnly free issuesPublishesMonthly
Issues26Founded3 years agoLast Issue8 days ago
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janeharrison.substack.com
Artwork for 📝 Notes from an MS Lifer

Latest Issues

Girl, you have no faith in medicine

Photo by Nik on Unsplash

*In Part 1 I wrote about how I became eligible for siponimod, an MS medication known as a disease modifying therapy (DMT), after seven years of not having any treatment available to me. I outlined what the research...

8 days ago
14
10

I got some pills, I'm gonna give you some

So pretty. Photo by Towfiqu barbhuiya on Unsplash

So it’s finally here, the one where I explore a decision about whether I should take siponimod, or not. I've been hinting at the arrival of this piece of writing for a while. Have I been pu...

a month ago
20
14

I know the sound of your wheels

Abstract wheel. Photo by bennett tobias on Unsplash

Adapting to disability has meant dealing with my failing body and learning to use mobility aids. My troubles played out as I attempted to make sense of it all through writing. Three of m...

2 months ago
18
12

One Potato, Two Potato

Photo by Hai Nguyen on Unsplash

*A new series of occasional posts in which I recount a desperate attempt to do something (usually culinary), that I can no longer really do because of the impact of my MS. With often disastrous consequences....

4 months ago
21
16

You had a bad day.

Plural. Photo by Kevin Grieve on Unsplash

I am feeling very happy to be back writing after last month’s comeback. This month I dusted down a piece I originally wrote back in November, but didn’t manage to finish at the time.


As aut...

4 months ago
22
10

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  • Jane Harrison

    Trying to make sense of life with this wrecking ball condition. “This is the best blog out there about living with Multiple Sclerosis” - Jane’s mum.

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