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oh these fragile bodies and lives

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Substack
PricingFreemiumPublishesWeekly
Issues94Founded6 years agoLast Issue5 days ago
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Latest Issues

Answering Brenda's question

A few times a month I get emails from people asking for advice about writing, parenting, adjusting to disability, and more. Unfortunately for me, none of the requests are about which robe to buy or the best scented hand lotion or the ideal...

5 days ago
23
12

Open Calendar and Booked Days

I spoke with someone this week who spent nearly a decade in unspeakable agony. Once they received a PANS diagnosis and began IVIG, they improved within days. As we wrapped up our conversation I asked if they were angry about the suffering a...

12 days ago
33
3

I do not like it but I am doing it anyway.

First, Thank you for your kind messages and donations after my last post. Truly.


K was at the hospital all day Wednesday and Thursday getting the treatment we fought months for. The side effects are significant. On Saturday night,...

23 days ago
34
9

Asking for your help

The first Mary Oliver poem I loved is called Two Kinds of Deliverance. There’s a section that echos in my head every spring:

next year

when spring

flows over the starting point I’ll think I’m going to

drown in the shimmering miles of it...

a month ago
48
3

Dr. Mara Gordon and Jessica Slice on Mutual Trust Between Doctors and Patients

It was an absolute delight to spend time with Mara Gordon yesterday, trying to solve medical care (ha!) She is a family physician and NPR medical columnist who has become one of my favorite thinkers about the culture of medicine. We’ve been...

2 months ago
18
6

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Authors

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  • Jessica Slice

    Disabled author of Unfit Parent, This Is How We Play, Dateable. NYT, Modern Love, Washington Post, etc. Writing from my adjustable bed.

  • Mara Gordon, MD

    Health care is a mess. Let's figure it out together. I'm a family doctor, mom, and writer. I write NPR's *Real Talk With A Doc* column. My book HOW TO TAKE UP SPACE is coming in Spring 2027.

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