Life and Perspective with a Degenerative Disease
Platform | ![]() | Pricing | Freemium | Publishes | Weekly |
---|---|---|---|---|---|
Issues | 4 | Subscribers | Read | kaetran.substack.com |
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I wrote this back in 2017 on Medium, during a season of my life when I felt caught between who I was and who I thought I needed to be. Living with a rare disability can leave you feeling low and lost. Everything felt unfair, and I often fel...
Originally written in July 2023 but I'm sharing this now in light of the new Snow White movie release.
When I was first diagnosed with LGMD2B, I didn’t know anyone else like me. No one who understood the quiet grief of losing small pieces of independence, or the mental math it takes to plan a day around energy levels, or the emotional weight...
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Hi! I'm Kae, a creative human bean coexisting with a rare progressive muscle-wasting disease called Muscular Dystrophy. I talk about all things creative, accessibility, wellness, spirituality, mental health, policy change, and design thinking.
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