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In My Shoes

Karen McIntyre

Writing the book I wish I had when I was diagnosed with Parkinson's.

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Substack
PricingOnly free issuesPublishesWeekly
Issues22Founded8 months agoLast Issue6 days ago
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Latest Issues

THE EDGE OF ACCEPTANCE

Can’t believe I’m sharing this. But here we are.

I thought I had accepted my diagnosis that rocky first year.

Turns out, mine was a conditional acceptance: I accepted I had Parkinson’s, as long as it didn’t get too bad.

Theoretically, I...

6 days ago
10
13

RUNNING FROM GRIEF

Speaking at the World Parkinson’s Congress.

I’m standing on a treadmill in the fitness center of the Phoenix Sheraton. I’m here for the World Parkinson’s Congress, and the room is rocking. Every cardio machine, taken. Well, good for us! Lo...

13 days ago
13
8

USE YOUR MOST ANNOYING TRAITS TO FIGHT PARKINSON’S

Hello, pitiful humans. Lucky for you, I’m writing this column for Karen while she practices “Self Care” — resting, exercising, whatever. It’s adorable that she now prefers these activities to hard drinking.

She calls me an “annoying lizard...

2 months ago
11
4

TIRED OF PARKINSON'S.

Kevin, my Parkinson’s familiar and the world’s least helpful therapist.

I’m tired of Parkinson’s.

Tired of feeling my left arm jingle jangle with tremors and that particular feeling of physical incompetence between weakness and anar...

2 months ago
12
11

IS IT JUST ME?

Kevin, my Parkinson’s familiar, would prefer that I keep all this to myself.

Does this ever happen to you?

Last night, I woke from a deep sleep to an unbearable, piercing pain in my right leg. A dystonic spasm. I felt like a bear with its...

2 months ago
10
5

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  • Karen McIntyre

    Writer & support group leader walking through Parkinson’s Disease with humor, friendship, and a jumble of metaphors at the bottom of my closet. I'm writing the book I wish I had when I was diagnosed, and I'd love it if you'd walk with me.

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