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The Substack to explore the world of Long Covid & ME. A guide through the labyrinth of culture, philosophy, medical history & research. Let's shift the paradigm together.

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Artwork for Long Covid Advocacy

Latest Issues

Open Letter Urges Royal College of Psychiatrists to Align with Current Evidence

It is ME Awareness Day, and the publication of our open letter to the Royal College of Psychiatrists sits within a long and well-documented history of contested approaches to ME within psychiatry and adjacent services.

Our central concern...

15 days ago
47
4

Long Covid on Quiet Riot

We have some exciting news. Claire from LCA was interviewed for the popular politics pod ‘Quiet Riot’ to mark the end of Long Covid Awareness Month. The pod has a good track history of covering the illness with integrity and knowledge - huz...

2 months ago
23
1

On Medical Education for Long Covid/IACI with Prof David Putrino

Introduction

In this special episode for Long Covid Awareness Day, Dr Rupert Higham, lecturer in Learning and Leadership from the Institute of Education at UCL speaks with Professor David Putrino, neuroscientist and rehabilitation spe...

2 months ago
19
2

A Gift for Long Covid Awareness Day

We know Long Covid Awareness Day is not the easiest of days - it can be triggering and exhausting. So, we thought instead of asking the community to do anything, we would give you something!

Our medical binder has been a lifesaver for us i...

2 months ago
18

Big Cat Activism

There is often a cultural expectation that sick and disabled people need to be ‘measured’, ‘collected’ —even grateful in relation to others and society. Alice Wong’s rip-roaring memoir Year of the Tiger firmly challenges that by catalysing...

3 months ago
11
3

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  • Long Covid Advocacy

    Exploring the world of Long Covid & ME/CFS with an irreverant twist. A guide through the labyrinth of the culture, philosophy, medical history & research.

  • Caro Clarke

    Literary agent based in Edinburgh, Scotland. Bookseller Rising Star 2024 and Rights Professional of the Year at the Nibbies 2021

  • Laura Elliott

    Disabled author and journalist

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