Disability, Chronic Illness, & Culture
Rebecca UptonDisability & cultural analysis from Rebecca, a chronically ill Disability Studies student
| Platform |  | Pricing | Freemium | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 95 | Founded | 3 years ago | Last Issue | 12 days ago |
| Active | |||||
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uptonrebecca.substack.comLatest Issues
Everyone in the Disability Community Should Fight for Myalgic Encephalomyelitis Patients
Content warning: ableism, medical neglect/gaslighting, and institutionalization of ME patients, mention of death/suicide risk
There is a condition that over sixty-seven million people in the world are living with. It is one of the most de...
The Exhausting Cycle of New Symptoms and Medical Gaslighting
On the everyday horrors of being a patient with chronic illnesses
I am so tired of constantly experiencing new symptoms to worry about. Of lying awake wondering if a condition is getting worse or if I have another undiagnosed condition. Of...
Yes, Treating Disabled People Like We're Disposable During a Pandemic Is a Form of Eugenics
Over the last six years, many disabled people have been sounding the alarm about the eugenic rhetoric that we have been hearing more frequently. People have become more comfortable expressing these views. When disabled people say those view...
The Idea of "Trendy TikTok Diagnoses" is Ableist
You may have heard about conditions like Ehlers-Danlos Syndrome or Postural Orthostatic Tachycardia Syndrome (POTS) through TikTok. Or maybe you heard about them because someone was complaining about how “trendy” they are because of TikTok...
Willowbrook State School & Judge Rotenberg Center: Legacies of Institutional Abuse
Content warning: Severe abuse & neglect of disabled children.
Willowbrook State School opened in 1947 in Staten Island. At its peak, 6,000 children were residents there. These children were labelled “mentally defective.” The extreme level...
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Authors
The writers behind this newsletter.
She/her. Writer with a degree in Disability Studies. Chronically ill, bipolar, autistic. Writing about disability here. Still masking. Free Palestine, Sudan, and Congo.
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