Poorvi Desai, MD
Welcome! I am a board certified Hematologist/Oncologist writing about Hypermobile Ehlers-Danlos Syndrome and related conditions. You will find medical information, not advice, here.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 10 | Founded | 2 years ago | Last Issue | 19 days ago |
| Active | |||||
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poorvidesaimd.substack.comLatest Issues
Commentary- The New JAMA Review on POTS: Exercise, hEDS, and What Was Missed
A few days ago, and I sat down on an instagram live to discuss the new JAMA review article on POTS. Here, you can watch our commentary on the review:
Learn more about POTS here.
On instagram, you can follow Taylor @thehypermobilechiro an...
Cure, Remission, or Improvement? How to Talk About Getting Better with Hypermobility
It seems like there is no shortage of people online claiming to “cure” POTS, MCAS, and ME/CFS, which are comorbid conditions of hypermobility. Some have even shared about their symptoms going “into remission.” At best, these terms can be us...
Understanding Post-Exertional Malaise
Author’s Note: In 2015 the Institute of Medicine released a report proposing the alternative name "systemic exertion intolerance disease" to replace “chronic fatigue syndrome” in ME/CFS. However this was not widely adopted and “ME/CFS” rema...
An Intro to Mast Cells
What is a Mast Cell?
You may have heard the term “MCAS” or Mast Cell Activation Syndrome, and wondered what exactly is a mast cell?
According to the National Cancer Institute:
“Mast Cell- A type of white blood cell that is found in...
I am a Spare Tire.
A few years ago I traded in my 11 year old Honda CRV that was on life support. It didn’t feature Apple Car Play or hook up to Bluetooth, so if I wanted to listen to my Spotify playlists I had to use my air pods. With each turn I was sliding...
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Welcome! I am a board certified Hematologist/Oncologist writing about Hypermobile Ehlers-Danlos Syndrome and related conditions. You will find medical information, not advice, here.
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