
Exploring the science, research, and lived experiences of complex chronic conditions through thoughtful, evidence-driven science communication.
| Platform | Pricing | Freemium | Publishes | Twice weekly | |
|---|---|---|---|---|---|
| Issues | 223 | Founded | 3 years ago | Last Issue | 8 days ago |
| Active | |||||

And it might not be what you think
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
This blog was written in collaboration with Dr. Sarrah Hannon. Dr. Hannon is a patient researcher working on the biochemical phenotype of hEDS and HSD. She was previously a forensic toxicologist, but left their career to pursue a PhD in pha...
What the Research (and the Community) Actually Says
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
I just returned from the Ehlers-Danlos Society global learning conference. There was a lot of talk about new diagnostic criter...
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
When people talk about how expensive it is to live with a chronic illness, most people think of medical bills. And whil...
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How this newsletter ranks in the official Substack charts.
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The writers behind this newsletter.
I’m a scientist, science communicator, and chronic illness patient. My work spans genetics, molecular biology, and clinical research in complex chronic illnesses. I write about science and research, lived experience, and patient-centered science.
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