Exploring the science, research, and lived experiences of complex chronic conditions through thoughtful, evidence-driven science communication.
| Platform |  | Pricing | Freemium | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 207 | Founded | 3 years ago | Last Issue | 4 days ago |
| Active | |||||
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cortneygensemer.substack.comLatest Issues
Cardiac Involvement in Hypermobile EDS
Two new papers were recently published on cardiac involvement in hypermobile Ehlers-Danlos syndrome (hEDS)
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
How the healthcare system is failing hEDS patients
If you live with hEDS an your healthcare has felt fragmented, contradictory, or just absent altogether, you are not alone. There are several ways our healthcare system is failing hEDS patients.
1. There is no governing medical body...
I Thought I’d Never Run Again.
But with EDS and more, I ran a 10k.
I used to be an athlete. Then hEDS happened, or I finally understood what had been happening to my body all along, and everything had piled up over the years. Soon came scapula issues and nerve entrapmen...
An archive of EDS research and resources
May is Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month. I wanted to summarize everything I’ve covered on EDS and HSD since starting Cort Does Science! The articles are organized by topic for easy reading. Whether...
Mitochondrial Differences in ME/CFS
A New Multi-Study Analysis Finds Signals Across Several Genes and Proteins
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
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Authors
The writers behind this newsletter.
I’m a scientist, science communicator, and chronic illness patient. My work spans genetics, molecular biology, and clinical research in complex chronic illnesses. I write about science and research, lived experience, and patient-centered science.
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