Exploring the science, research, and lived experiences of complex chronic conditions through thoughtful, evidence-driven science communication.
| Platform |  | Pricing | Freemium | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 215 | Founded | 3 years ago | Last Issue | 9 days ago |
| Active | |||||
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cortneygensemer.substack.comLatest Issues
6 Areas of Physiological Abnormality in ME/CFS: What the Research Shows
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
A note on terminology: Many patients and advocates prefer "ME," as "CFS" (Chronic Fatigue Syndrome) has historically been used...
Addressing one of the biggest debates in the EDS space
Are hEDS and HSD the same or different?
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
POTS is not one condition
Neuroimmune biology, hypertensive endotypes, and why subtype should shape treatment
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
83% of POTS Patients in This Cohort Had Pelvic Venous Disease
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
A new paper in eClinicalMedicine is the most substantial data yet on a connection the dysautonomia and pelvic medicine commun...
Leaving Academia, Not Leaving the Work
I fell in love with research during my PhD. I had found a topic I cared about, the biology of Ehlers-Danlos syndromes, in a lab that was willing to let me study it. I also have hEDS myself, so it was deeply personal. I stayed on as a postdo...
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Authors
The writers behind this newsletter.
I’m a scientist, science communicator, and chronic illness patient. My work spans genetics, molecular biology, and clinical research in complex chronic illnesses. I write about science and research, lived experience, and patient-centered science.
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