Exploring the science, research, and lived experiences of complex chronic conditions through thoughtful, evidence-driven science communication.
| Platform |  | Pricing | Freemium | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 228 | Founded | 3 years ago | Last Issue | 8 days ago |
| Active | |||||
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cortneygensemer.substack.comLatest Issues
The overlap of endometriosis and POTS
What a New Retrospective Study Found
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
When you give an overachiever a chronic illness
Stop trying to make rest productive!
I keep trying to make rest more productive. I know, rest isn’t supposed to have any sort of “deliverable” and it doesn’t need to be “earned”. But despite years and years of telling myself this, my brain...
How a genetic enzyme deficiency can lead to a cascade of connective tissue failures
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that are due to defects in how...
You can’t be THAT sick if...
What does “sick” look like?
“You can’t be that sick if…”
Researchers just proposed a framework for "neuro EDS"
Disclaimer: The views expressed here are my own and do not represent my employer or any affiliated organization.
I recently brought up the topic of a “neuro” type of Ehlers-Danlos syndrome. While not formally recognized as a subtype...
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Authors
The writers behind this newsletter.
I’m a scientist, science communicator, and chronic illness patient. My work spans genetics, molecular biology, and clinical research in complex chronic illnesses. I write about science and research, lived experience, and patient-centered science.
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