INCHSTONES
Sarah | Profound Autism MomSarah is a mom of 2 young kiddos with profound, nonspeaking autism and #1 voice for mothers of children with neurodiversity.
| Platform |  | Pricing | Freemium | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 255 | Founded | 3 years ago | Last Issue | 17 days ago |
| Active | |||||
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inchstones.substack.comLatest Issues
What Being a Mother to Children With Nonspeaking Autism Taught Me About Meaning
I am standing at the kitchen counter peeling clementines.
The skin gives way under my thumb in one clean piece, bright and fragrant where the zest forms a little burst and disappears, the kind of ordinary task mothers do without thinking....
Hills I Will Die On in an IEP Meeting
There are certain things I have stopped softening.
Chalk it up to being almost 43 years old. Chalk it up to perimenopause. Chalk it up to the natural trajectory of a woman who has carried enough, seen enough, and is no longer interested in...
I Spoke at the NIH Yesterday. Here’s What I Said and What I Didn’t.
Yesterday I sat in a room at the National Institutes of Health in Bethesda and listened to people fight for my children’s lives.
Yesterday I sat in a room at the National Institutes of Health in Bethesda and listened to people fight for my...
The Medicaid Waiver Debate: What RFK Said vs What the Disability Community Heard
There is a pattern that happens every time RFK speaks about autism, disability, Medicaid, medical waivers, or adults with disabilities.
The volume goes up almost immediately.
People stop responding to what was actually said and start reac...
The Caregiver Crisis Washington Still Doesn’t Fully See
For two days, I was on Capitol Hill advocating for families affected by autism. I met with the chiefs of staff and office members to Senators Cory Booker & Andy Kim and with Representatives Tom Kean Jr. & Frank Pallone. I told them what lif...
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The #1 voice of mothers & caregivers of children with profound autism. I help autism parents turn overwhelm into clarity by naming reality, complexities to enhance understanding. And as always, seek and find that joy \ud83d\udc9b
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