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Artwork for The Patient Voice Collective

The Patient Voice Collective

Marie Ennis-O'Connor

I write about the intersections of healthcare, empathy, digital culture, and what it really means to care.

Platform
Substack
PricingOnly free issuesPublishesTwice weekly
Issues17SubscribersRead patientvoicecollective.substack.com

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Latest Issues

Recent posts by this newsletter. Browse the email archive.

When the Plan Succeeds but the Patient Is Lost

The chart tells one story — vitals, codes, a neat account in numbers. The patient tells another — a story made of moments that resist the form: the pause after “I don’t sleep,” the shrug that lingers a beat too long. We need the numbers. Bu...

3 months ago
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3

The Body’s Unspoken Story: How Illness Speaks Without Words

Illness lives in the body — and so does the story of it. You can hear it in a pause before someone answers. You can see it in the way they shift in a chair, the tightness in a jaw, the way breath catches or slows. These are not incidental d...

4 months ago
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5

From Stories to Systems: Is Narrative Medicine Still on the Margins—Or Are We Finally Listening?

A new study tracing two decades of global research in narrative medicine has just been published. With over 28,000 articles analysed between 2004 and 2024, its findings confirm what many of us have sensed: storytelling in healthcare is no l...

4 months ago
4
2

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Authors

The writers behind this newsletter.

  • Marie Ennis-O'Connor

    I share practical guidance, real-world examples, and fresh thinking to help healthcare professionals and organisations communicate with clarity, credibility, and impact.

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