The Patient Voice Collective
Marie Ennis-O'ConnorI write about the intersections of healthcare, empathy, digital culture, and what it really means to care.
| Platform |  | Pricing | Only free issues | Publishes | Weekly |
|---|---|---|---|---|---|
| Issues | 20 | Founded | a year ago | Last Issue | 3 months ago |
| Active | |||||
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patientvoicecollective.substack.comLatest Issues
Tiny Stories: Why I Write
Thanks to this micro-essay through her Tiny Stories prompt.
I write because certain questions keep returning to me. How do people live with illness? How do they make sense of uncertainty? At what point does experience become a story someo...
The Clinical Famine: Why Survival Requires a Story
“Remember only this one thing,” said Badger. “The stories people tell have a way of taking care of them. If stories come to you, care for them. And learn to give them away where they are needed. Sometimes a person needs a story more than...
Making Listening a Core Competency in Healthcare
Healthcare is built on evidence, protocols, and outcomes. But ask patients or their families what they remember most about care, and the answers often sound different:
“They made time for me.”
“I felt rushed.”
“No one heard what I was...
When the Plan Succeeds but the Patient Is Lost
The chart tells one story — vitals, codes, a neat account in numbers. The patient tells another — a story made of moments that resist the form: the pause after “I don’t sleep,” the shrug that lingers a beat too long. We need the numbers. Bu...
The Body’s Unspoken Story: How Illness Speaks Without Words
Illness lives in the body — and so does the story of it. You can hear it in a pause before someone answers. You can see it in the way they shift in a chair, the tightness in a jaw, the way breath catches or slows. These are not incidental d...
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| Subscribers | Engagement | 67 | Monthly Web Visits | ||
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Authors
The writers behind this newsletter.
I explore what it means to be human in systems shaped by algorithms, stories, inequities, and emotion.
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