Beyond Migraine™
Jennifer Cannon \ud83e\udde0, Sarah LevisBeyond Migraine™ is a place for honest stories, hard truths, unexpected laughter, and the conversations we don’t always know how to have about Migraine, chronic illness, disability, advocacy, and life beyond the diagnosis.
| Platform |  | Pricing | Only free issues | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 97 | Founded | 2 years ago | Last Issue | 2 days ago |
| Active | |||||
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migrainegirl.substack.comLatest Issues
The Hidden Barrier to Patient Advocacy
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We hear it all the time in healthcare. Ask questions. Speak up. Be your own advocate. It sounds simple enough, except nobody explains what that actually means or how to do it. What questions should we ask? How do we kn...
You Don't Know What You Don't Know: The Hidden Barrier to Patient Advocacy
TRANSCRIPT:
In Monday’s post, I defined what helps literacy is, and I talked about why it’s important.
And now I want to take it a step further and talk about how to fit that into practice. Because honestly, you don’t know what you don’t...
Health Literacy Is a Shared Responsibility, Not a Patient Test
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“It’s just a headache. Get over it.”
Those were the words a neurologist said to me when my Migraine was beginning to become chronic. I would love to tell you I responded with a brilliant comeback. I did not. I left th...
Brain Fog Has Become a Buzzword and It’s Hiding Real Symptoms
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We have turned “brain fog” into a catch-all for every little memory hiccup. Lost your keys? Brain fog. Walked into a room and forgot why? Brain fog. Blanked on the name of someone you have known for ten years? Brain fo...
Porch Talk: 🧠 Brain Fog… More Than a Catchphrase
I will dig deeper into this in Friday’s article as I continue exploring what brain fog really is and the different ways it can present itself.
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Here is the Transcript of this video:
We’re going to talk about br...
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Authors
The writers behind this newsletter.
I’m Jennifer Cannon, writer, advocate, and creator of Beyond Migraine™. Through honest stories, advocacy, education, and poetry, I explore life with Chronic Hemiplegic Migraine, chronic illness, disability, and everything beyond the diagnosis.
I write about disability, power, and the wisdom of lived experience. My work challenges dominant narratives about disability and explores what those narratives reveal about agency, embodiment, and what it means to be human.
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