Dysautonomia Decoded
Making sense of dysautonomia, PoTS and Long COVID science one decoded article at a time.
| Platform |  | Pricing | Freemium | Publishes | Daily |
|---|---|---|---|---|---|
| Issues | 49 | Founded | 5 months ago | Last Issue | 7 days ago |
| Active | |||||
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dysautonomiadecoded.substack.comLatest Issues
Why Do So Many People With PoTS and EDS Also Have ADHD or Autism? The Research Is Starting to Answer This.
Today let’s decode something that comes up constantly in the PoTS and EDS community but has received relatively little accessible science writing. The overlap between dysautonomia, hypermobility and neurodivergent conditions including ADHD...
Researchers Examined Tissue from People Who Had Mild COVID-19. The Virus Had Left Its Mark.
A 2026 post-mortem study found persistent viral antigen and organ-specific inflammation in people who had mild COVID-19 more than 250 days earlier.
Today let’s decode a study that took an approach to Long COVID research that is both rare a...
“Sickfluencer.” The Word That Tells You Everything About How We Still See Women’s Illness.
Last week, The Telegraph published a piece by Poppy Coburn arguing that a generation of young women have turned chronic illness into a social identity, a lifestyle trend, an aesthetic. She coined, or at least popularised, the term “sickflue...
The Five Studies That Prove Chronic Illness Is Not in Your Head
If you have a chronic illness such as PoTS, ME/CFS, Long COVID, EDS or MCAS, the chances are high that you have been told at some point that your symptoms are anxiety, or something you could think your way out of. The research below will no...
What We Now Know About Treating PoTS. The 2026 Trial Update.
This is the PoTS instalment of this week’s clinical trial update series. Yesterday: Long COVID. Today: PoTS.
A reminder before we start of something worth holding throughout this piece. PoTS has no approved pharmacological treatment. Every...
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Authors
The writers behind this newsletter.
Hi, I'm Meg. PhD in neuroscience, researcher by day, and apparently now the person who reads every PoTS, Long-Covid, dysautonomia paper so you don't have to. New pieces weekly.
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