Lupus in Community
Fatimah Ali, PhD-Lupus Health, Candy Price, Flame & Flare | Simla Somturk, Dua, Samantha ✨Self-Care Alchemist✨Strengthening the lupus and chronic illness community through education, inspiration, and connection. From practical wellness resources to real stories of hope on our podcast, we are here to ensure you feel seen, supported, and stronger.
| Platform |  | Pricing | Freemium | Publishes | Twice weekly |
|---|---|---|---|---|---|
| Issues | 58 | Founded | 10 months ago | Last Issue | 18 days ago |
| Active | |||||
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lupustogether.substack.comLatest Issues
More Than What You Can See: Lupus, Stroke, and the Need to Be Believed
I first met Harmonie at a Lupus Foundation of America (LFA) event in Nashville Tennessee. I couldn’t help but notice her upbeat comments behind every statement made by the presenters. She reminded me of a scent at church. We sat at the same...
Validation, Medical Dismissal, and Self-Advocacy
Last week, we talked about lupus hiding in invisible symptoms and in the inconsistencies of good and bad days. This week, the conversation is about what that often leads to — not being believed and what that costs.
This article is f...
What Lupus Can Look Like and What It Can Hide
“But you don’t look sick.”
You’ve heard this if you live with an invisible illness such as lupus. It may be some version of this at work, at a family gathering, from friends or a significant other. It’s often confusion dressed up as a comp...
Lupus - Diagnosed Young vs. Diagnosed Older
Some of us were diagnosed as kids, before we had the words for what was happening to our bodies and some diagnosed as adults, after a life had already started taking shape around us. Neither path is easier, they’re just different kinds of h...
When Hormones Shift, So Does Lupus. Live with Fatimah Ali, PhD-Lupus Health and Flame & Flare | Simla Somturk
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| Subscribers | Engagement | 77 | Monthly Web Visits | ||
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Authors
The writers behind this newsletter.
Public health educator and lupus advocate offering 1:1 health-education guidance and practical tools for people newly diagnosed or years into lupus—to prepare, organize, understand, communicate, and advocate for themselves.
Build stronger bones, steadier balance, and a body you trust. Science-based research one weekly story at a time. | BoneFit™ trained | 27 years in healthcare.
For women 40+ ready to reframe the flames & flares of perimenopause + autoimmune as their midlife reset. From a nutrition & health coach and ex-C-level exec with lived experience reversing autoimmune, fibro, CFS & more. Real health, not hacks.™
Poet, artist, and romance novelist. Dreamer. 🪄🌹Imagination is the only weapon I've got. A Romantic. #SavePalestine 🇵🇸|INFP 🌱🖌️
Helping women who’ve outgrown the life they built organize their lives around Self Devotion instead of obligation, creating the capacity for Shameless Bliss. Essays, experiments, and conversations for women redesigning life on their own terms.
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